UK ME/CFS Biobank hosting Unrest screening with livestreamed Q&A after, Thurs 2nd Nov

Somebody (memory, memory o_O) said that in a few days, the LSHTM CureME group will be announcing a Justgiving fundraiser for £10k to raise money to fund a study to be run using biobank samples (researchers will have to apply and have their application assessed). I think a stretch-goal may be £25k, if I've got that right.
 
I forgot when it was on, but from the link above I've just watched the panel answering questions. It starts at about 3 hours 25 mins into the recording. Good overview of what the biobank is doing. They will be doing a Just Giving Christmas appeal.
 
This link still works and takes you straight to the discussion.
https://panopto.lshtm.ac.uk/Panopto/Pages/Viewer.aspx?id=3f756fa1-4190-454f-83a5-71a1063508bd

very interesting QandA. I didn't realise that the Biobank don't have samples from children. Another reason why Crawley is so keen on the MEGA biobank idea(?)

Question: Dr Jackie Cliff (Biobank researcher) said that they had not found evidence of the Natural Killer Cell problem; but in Unrest, Nancy Klimas says this is something she found......

Which is right? Have I misunderstood(?) @alicec @Woolie @Hip
 
Can't remember seeing anything about the brief exchange between Jonathan Edwards ad Charles Shepherd about NICE in the Q&A at the bio bank. Seemed like they or at least Charles are aware of more positive developments to come. I can only think that either
- NICE are going to put interim wording in place about GET/CBT
Or
- the new guidelines committee is being constituted and there are some good biomedical people signed up
 
Question: Dr Jackie Cliff (Biobank researcher) said that they had not found evidence of the Natural Killer Cell problem; but in Unrest, Nancy Klimas says this is something she found......

Which is right? Have I misunderstood(?)

My understanding is that there is no consensus that there is low NK cell activity in PWME. There have been too many inconsistencies and failures to replicate results.

I believe there is an international study which is trying to replicate results but really I am not up with the latest.

@Jonathan Edwards should know more about this.
 
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