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UK: NHS website: Myalgic encephalomyelitis, chronic fatigue syndrome ME/CFS

Discussion in 'Resources' started by Sly Saint, Aug 12, 2023.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,580
    Location:
    UK
    best NHS site is the NHS Scotland site
    https://www.nhsinform.scot/illnesse...lomyelitis-me-or-chronic-fatigue-syndrome-cfs

    https://www.nhsinform.scot/illnesse...lomyelitis-me-or-chronic-fatigue-syndrome-cfs

    do not use the NHS England site, the information is not up to date and not properly in line with the NICE guidelines.

    NICE guideline [NG206] Published: 29 October 2021

    https://www.nice.org.uk/guidance/ng206
     
    Last edited: Aug 13, 2023
    MEMarge, DokaGirl, MeSci and 9 others like this.
  2. Ariel

    Ariel Senior Member (Voting Rights)

    Messages:
    1,057
    Location:
    UK
    Is there any hope of eg the charities flagging this issue in their materials to put pressure on NHS England to change the website before whenever it was supposed to be in 2024 that they are making a change?
     
    DokaGirl, EzzieD, Wonko and 5 others like this.
  3. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,814
    Location:
    Aotearoa New Zealand
    Follow the link to the discussion thread below to comment on the NHS's update plan for its ME/CFS webpages:
    4. UK 2023 Interim Delivery Plan on ME/CFS consultation: Agreed Actions
     
    MEMarge, Ariel, DokaGirl and 3 others like this.
  4. Adrian

    Adrian Administrator Staff Member

    Messages:
    6,486
    Location:
    UK
    I think the Charities are flagging issues with various material and services provided by clinics. It something Charles Shepard has talked about doing at FME meetings. Not sure about this particular website though.
     
    alktipping, RedFox, Ariel and 4 others like this.

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