UK: Physios for ME

Another day another webinar! Today had a COVID emphasis for rehab professionals but we were able to present to over 400 participants about ME and the abnormal physiological response to activity. We've had some great feedback already and so hopefully a few more professionals now know more than before! The link should be up on youtube soon so I will share when I have it
 
One thing I've noticed is how insular physicians with LC act compared to other medical specialties, who far more openly speak out in public. Physicians seem to mostly make private groups and keep discussions secret.

Seeing the very people who live by exercise share the same harsh lessons that the patient community has lived with for decades is a significant moment in history. It's slow but the momentum is building. And really fortunate that it happened at a time when the relevant material was finally available and promoted. It will be like a chain reaction reaching critical mass.







 
medical education via twitter what a world we live in . i wonder if there will ever be a major public inquiry into the abject failure of medical education and the politically motivated creation of multiple quangos ccgs that have no public say in how they operate and no consequence for there gross waste of public funds in promoting ideology over proper science .
 
alktipping said:
medical education via twitter what a world we live in .
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I agree, but...

Arguably, it has made a difference. Twitter has been very effective at enabling people to get messages out about the existence of long Covid, the impact of the symptoms, the numbers of people suffering, and the whole controversy about GET.

It's not going to change the minds of practitioners with entrenched views about exercise, of course. But it offers both professionals and patients a way to challenge them – and by doing so, they draw attention to the fact that these 'treatments' are contested. This has real potential to limit harm.

Should it be done like this? Course not, it's ludicrous. But given the history, it's a whole lot better than the alternative: a whole new cohort of people falling victim to potentially harmful treatments because they weren't aware of the red flags.
 
Physios for ME present to Physiotherapy Students
On Tuesday 19 January, Physios for ME took part in an online presentation to physiotherapy students about Long Covid. We were joined by Darren Brown from Long Covid Physio and Emma Gentle, a physio who manages a Long Covid rehab service.

We covered incidence, demographics and symptoms, what can be learned from post viral fatigue syndrome and ME, fatigue definition and management, precautions about exercise, and personal Long Covid experiences.
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https://www.physiosforme.com/post/p...rapy-students?postId=6009c109fc720f001790af72

We were thrilled to present to over 400 physiotherapy students about #LongCovid and #ME this week. Read more about it here: physiosforme.com/post/physios-f… And watch it here: youtube.com/watch?v=5wcPUY…
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Code: 
https://twitter.com/PhysiosForME/status/1352317364822540290
 
Research update - delays and wins
We posted a quick update about our research project before Christmas and indicated that recruitment had already been delayed due to the pandemic. Unfortunately as lockdowns continue, it looks like we will have even further delays.

While this is frustrating, the data collection involves going into the homes of people with ME, and we have to prioritise the safety of all our participants. We will continue to communicate a timescale as and when we have one.

But in more positive news, we heard this week that we had not one, but two poster presentations accepted at the World Physiotherapy Congress 2021, which is a large international scientific congress taking place online in April 2021.
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https://www.physiosforme.com/post/research-update-delays-and-wins?postId=600aa26d30dc47001702ec9a
 
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