UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

[Njc36]

This is an interesting proposal, but I note with caution that due to significant variations in daily activities, it can be difficult to separate the noise from the signal, unless they use long sampling times, or a large sample size. As such, the feasibility study will simply demonstrate that the data can be collected and that patients won't go on strike when subject to repeated testing!

Remember this is about the feasibility of a larger trial. Absolutely agree that the data from this trial will not have the statistical power to prove anything. Thanks for your thoughts

 

[Wonko]

Re cognitive testing, there's a whole suite of tests available here:
https://www.cambridgebrainsciences.com/science/tasks
The individual tasks all have a button saying 'Start here for free' but it doesn't work for me, probably some setting on my computer, so haven't been able to test any.

Doesn't work for me either.

(in either chrome, firefox, tor or an untouched copy of IE)

 

[Njc36]

Physios for ME have announced a new study led by Dr Nicola Clague-Baker and funded by the MEA Ramsay Research fund.

Full title of study:

“Feasibility of investigating oxygen consumption (VO2), heart rate, blood pressure, lactic acid levels and activity levels of people with Myalgic Encephalomyelitis during normal daily activities.”

Physios for ME announcement:
Physios for ME secure funding for research

MEA announcement:
ME Association Research: New study to measure physiological changes in daily activity in people with ME

Physios for ME have announced a new study led by Dr Nicola Clague-Baker and funded by the MEA Ramsay Research fund.

Full title of study:

“Feasibility of investigating oxygen consumption (VO2), heart rate, blood pressure, lactic acid levels and activity levels of people with Myalgic Encephalomyelitis during normal daily activities.”

Physios for ME announcement:
Physios for ME secure funding for research

MEA announcement:
ME Association Research: New study to measure physiological changes in daily activity in people with ME

Thank you for all your comments and suggestions. I am hoping that once the uni semester is over that I can have a good read of all you comments and discuss with the team any additional ideas for the proposal before we submit ethics. We really do appreciate all of your thoughts and contributions and will keep you all informed. Thanks Nikki