Andy
Senior Member (Voting rights)
Dutch researchers involved, what could possibly go wrong....
The Steering Group (which looks very over-balanced in favour of 'professionals')
And their current survey, https://york.qualtrics.com/jfe/form/SV_1LdGIB0MF6Z4iCV, which doesn't say when it closes...
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Moderator note: Go to this post for the results published in July 2022
https://www.york.ac.uk/healthsciences/research/mental-health/projects/mnyes/Medically Not Yet Explained Symptoms represent up to 10-30% of presentations in general medicine settings. They can include fatigue, pain, dizziness, irritable bowel syndrome, and functional neurological symptoms.
The focus of research on Medically Not Yet Explained Symptoms is often on particular subsets of symptoms, such as chronic pain, chronic fatigue, irritable bowel syndrome, or dizziness, but it lacks a comprehensive view. This has ramifications for patients who visit different clinics for their various symptoms, without sustained improvement.
The Medically Not Yet Explained Symptoms PSP was established in 2020 to support patients, carers and clinicians in the UK and in the Netherlands in the development of a research agenda with patient knowledge, experience and preferences as the frame of reference.
This Anglo-Dutch partnership will also enable exploration of international and intercultural differences that might be of interest for future development of services and the co-design of research to develop better treatment and care.
The Steering Group (which looks very over-balanced in favour of 'professionals')
Patient and carer representative/s:
Clinical representative/s:
- Annie Shaw
- Scott Spain
- Lesley Spain (carer)
- Steph Hayle
- Rosie Evans
Information specialists:
- Professor Christina van der Feltz-Cornelis, Honorary Consultant Psychiatry, University of York, TEWV NHS Trust
- Dr James Sampford, Consultant Psychiatrist, TEWV NHS Trust
- Dr Jennifer Gilligan, Specialty Doctor in Psychiarty, TEWV NHS Trust
- Dr Steven Evans, Psychologist, York Teaching Hospital, York
- Dr Christopher Price, Clinical Reader in Stroke Medicine, Newcastle University
- Dr Andrew Moriarty, General Practitioner
- Dr Arvind Kaul, Consultant Rheumatologist, St Georges Hospital and Medical School in London
- Dr Nick Gall, Consultant Cardiologist, Kings College Hospital NHS Foundation Trust
- Dr Phil Duffey, Neurologist, York Teaching Hospital
- Tracey Cunningham, Physiotherapist, TEWV NHS Trust
- Dr Philippa Bolton, Clinical Liaison Psychiatrist, TEWV NHS Trust
- Dr Caroline Vos, Gynaecologist, Tweestedenziekenhuis, Tilburg, The Netherlands
- Ad Vorselaars, Occupational Physician, Arbo Unie, The Netherlands
- Dr Arjan Videler, Psychotherapist, CLGG, Tilburg, The Netherlands
Project coordinators:
- Danielle Varley, University of York
- Dr Iman Elfeddali, and Prof Dr Wijo Kop, Tilburg University
James Lind Alliance Adviser and Chair of the Steering Group:
- Sally Brabyn, University of York, UK
- Llinh Nguyen, Clinical Centre for Body, Mind and Health, The Netherlands
- Dr Jonathan Gower, UK
- Dr Margot Metz, The Netherlands
And their current survey, https://york.qualtrics.com/jfe/form/SV_1LdGIB0MF6Z4iCV, which doesn't say when it closes...
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Moderator note: Go to this post for the results published in July 2022
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