University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

Copied from the Long Covid thread

This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to build support for a BPS approach to LC. You know what to do: answer honestly. It's short, about 5-10 minutes.

 

From the survey

Threads we have on the work of Prof Van Der Feltz-Cornelis (you may spot a theme that emerges)
IL-6 and hsCRP in Somatic Symptom Disorders and related disorders, 2021, van der Feltz-Cornelis et al
Assessment of cytokines, microRNA and patient related outcome measures in conversion disorder/[FND], 2021, van der Feltz-Cornelis et al
Priority Setting Partnership: Medically Not Yet Explained Symptoms
Misdiagnosis of an underlying medical condition as Conversion Disorder/Functional Neurological Disorder (CD/FND), 2020, van der Feltz-Cornelis et al
Childhood sexual abuse predicts treatment outcome in conversion disorder/functional neurological disorder, 2020, Van der Feltz-Cornelis et al
A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders, 2018, van der Feltz-Cornelis et al

 

Moved post

Oh dear me, I answered that very honestly indeed and told them what a lot of bullshit it was.
Quite enjoyed it.
Presumably NIHR funded.

I am wondering who this Lyth Hishmeh guy is - I guess a psychologist?

 

I emphasised that it is unethical to set up any integrated care pathway until they have some EVIDENCE that it is beneficial.

 

So what on earth are they going to do with the fact that I said I was unhappy or depressed several days this week - which I was, because of having Covid, coming back from holiday and reading the news.

It reminds me of those automatic telephone conversations when it says 'I didn't quite catch that, did you mean to say 'underwear department'?

 

How can they "have to take" an approach that is already the standard that failed Long Covid to begin with? It's literally because of a BPS approach that medicine has nothing but a BPS approach to offer to Long Covid. It's what's failed since the beginning.

And the solution is to "take a BPS approach" since the BPS approach doesn't work simply because people pretend this isn't already the case? Even as they boast that it's already good because it's BPS? What incredible circular nonsense. It's like reality has no bearing on anything. It's not even fair to use the usual joke about the inmates running the asylum since this is the rare case where it's actually mostly true.

 

First off, it appears they are dismissing biomedical care for people with more than one physical illness. Or, they are promoting adding psych care to bio care for people with more than one disease.

Why would an integrated approach (ie. psych + bio) be needed for as an example, a person with asthma and hypothyroidism? Are we now to understand that if someone has more than one disease, there is something wrong with their thinking or beliefs?

Back to reading their info...

ETA: not dismissing biomedical care for more than one long term illness, but saying it's not effective as just one arm of care. Proof?

I've had counseling re ME - no help. Biomedical care didn't hit the mark either except as an exclusion measure - what I don't have.

Testing was not, (of course) geared to ME. Nor was it geared to neurological and cognitive problems I listed. For example no brain MRI, or memory testing etc.

Post Canadian Consensus Criteria publication in 2003, I pursued proof listed in the CCC Overview. And, evidence did show up.