UPDATE: UofT Undergrad Finding ME/CFS Research

[zhang]

Hi guys, sorry for not responding. I was the person from this post.

I have not had any luck finding labs, so I decided to do my own review research.

I am hoping to submit something to next year's International Forum on COVID Rehabilitation Research at UofT. More info can be found here.

My review paper will summarize recent primary research on ME/CFS in a way that non-scientists can understand. Any tips on this are appreciated.

I am also hoping to speak with people with ME/CFS about their experiences and what they hope for in terms of research. Feel free to reply with your story or reach out to contact me for this.

As for now, I am focusing on my undergrad studies. I am reading up on some research right now, but I don't have too much time to start writing a review paper. I am also facing chronic fatigue and chronic pain from stress and probably some undiagnosed chronic illness (unsure what it is), so I am not able to do as much as I'd hoped.

Thanks for replying, and have a great day <3

 

[Jaybee00]

My review paper will summarize recent primary research on ME/CFS in a way that non-scientists can understand. Any tips on this are appreciated.

Only tip is to avoid including low quality studies in your review. That will eliminate about 90% of all the studies.

Best of luck.

 

[SugarSquared]

Hi! Thank you for updating us! If you want to interview me for my experience and perspective, feel free to DM me.

 

[zhang]

Only tip is to avoid including low quality studies in your review. That will eliminate about 90% of all the studies.

Best of luck.

That's unfortunate that there's so little quality studies, but thanks for the tip

 

[zhang]

Hi! Thank you for updating us! If you want to interview me for my experience and perspective, feel free to DM me.

That would be wonderful, I'll keep this in mind. I'm also open to directly DMing questions or whatever depending on what accomodations you might need

 

[ScoutB]

Yes as Jaybee00 says unfortunately there's just a lot of noise out there. It's a general problem in research but we may have it especially bad in ME/CFS. This forum exists in part to try and sift some signal out of the chaos

I seem to be linking this every other day now, but some great examples of distilling research for non-scientists can be found on the ME/CFS Science Blog. They have a number of really well analyzed and clearly written reviews on various topics, for example here's their 2025 Review of some of the most interesting research.

Another great one is Simon McGrath's blog -- here's a post of his covering a recent paper about how ME/CFS incidence seems to have two age peaks.

Sorry to hear you've had no luck with labs and about the chronic health struggles. I hope things ease up for you a little soon.

 

[zhang]

Yes as Jaybee00 says unfortunately there's just a lot of noise out there. It's a general problem in research but we may have it especially bad in ME/CFS. This forum exists in part to try and sift some signal out of the chaos

I seem to be linking this every other day now, but some great examples of distilling research for non-scientists can be found on the ME/CFS Science Blog. They have a number of really well analyzed and clearly written reviews on various topics, for example here's their 2025 Review of some of the most interesting research.

Another great one is Simon McGrath's blog -- here's a post of his covering a recent paper about how ME/CFS incidence seems to have two age peaks.

Sorry to hear you've had no luck with labs and about the chronic health struggles. I hope things ease up for you a little soon.

Thank you so much. Things are unfortunately super competitive nowadays. I appreciate the sources. With health, I'd love to get diagnosed, but unfortunately I have not a clue of what's happening so I do my best to take it easy.