Updates from the UK ME/CFS Biobank / CureME team

Copy of tweet:

CureME - UK ME/CFS Biobank
@mecfsbiobank
We're thrilled by the amazing interest in our upcoming hybrid event on September 19th at LSHTM! To join us, please register by clicking the link: https://forms.office.com/e/HY35YL4u8a or scan the QR code below. We can’t wait to meet you, share our latest research, and answer your questions!

 

An earlier tweet for what it is worth:

Copy of tweet:
CureME - UK ME/CFS Biobank
@mecfsbiobank
Save the Date On September 19th, join the CureME team at LSHTM from 5 PM to 8 PM for a research exchange. We invite ME/CFS patients and researchers to share insights and connect!

 

I had an email but there’s not a lot more info

 

Link to the zoom has been emailed and posted on their facebook page

 

Link to watch and download the video.
https://bit.ly/4didHTK
I’ve not listened yet but from a skip through it has detailed presentations from various people on the different studies that have been taking place and their findings, looks very interesting.

 

Excellent, thank you!

 

It’s no longer there. No idea if it is anywhere else yet: nothing has been posted to their Twitter account.

 

Maybe a temporary problem? The link is on their Facebook page and there are comments about issues accessing it but I just checked and it seems fine.

 

Thanks, it’s back working.

 

End-of-year updates from the CureME team


https://mailchi.mp/lshtm/our-new-study-is-underway-16529659?e=90f7243e18

 

From Facebook


Join our first #CureME event of the year

Our interactive webinar will focus on: "Building Bridges: Community Strategies and Research Insights from the CureME Team for #MECFS Study Participants"

Monday 10 February, 14.00
Online

More details ⬇️
https://forms.office.com/e/JCx5NP1ZYn

 

Hi Dolphin

That link didn't work for me at all. I got a message saying "This form is not accepting responses"

I did a quick search on the Cure ME website and found this link for events which lists this webinar:

https://cureme.lshtm.ac.uk/index.php/me-cfs-events/

 

I think I read there were only a small number of spaces, maybe 25? So good chance they reached their limit.

 

Yes, limited space but recording available after. This from an email I received

 

Dr Jacqueline Cliff Has been doing the HHV-6 reactivation study which is ongoing
https://www.brunel.ac.uk/research/projects/reactivation-of-herpesviruses-in-chronic-fatigue-syndrome