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Updates from the UK ME/CFS Biobank / CureME team

Discussion in 'ME/CFS research news' started by Andy, Feb 14, 2018.

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Page 4 of 6
  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    not so good for Suffolk
     
    Sly Saint, Apr 5, 2019
    #61
    MEMarge, Nellie, It's M.E. Linda and 2 others like this.
  2. Suffolkres

    Suffolkres Senior Member (Voting Rights)

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    1,639
    I know, but his appointment is for the wider more common good.
    Know anyone who wants this job?!!
     
    Suffolkres, Apr 5, 2019
    #62
    Hutan, It's M.E. Linda, MEMarge and 3 others like this.
  3. Andy

    Andy Committee Member

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    Andy, Apr 23, 2019
    #63
    ladycatlover, Daisybell, Cheshire and 12 others like this.
  4. Hutan

    Hutan Moderator Staff Member

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    It will be good to have some replication of the 2018 study on this topic that was done by Unger and others.
     
    Hutan, Apr 23, 2019
    #64
    Jacob Richter, ladycatlover, MEMarge and 10 others like this.
  5. Andy

    Andy Committee Member

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    Code:
    https://www.facebook.com/mecfsbiobank/posts/2290448331002597


    https://twitter.com/user/status/1124659946791030784
     
    Andy, May 4, 2019
    #65
    Jacob Richter, Kitty, ladycatlover and 7 others like this.
  6. Andy

    Andy Committee Member

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    Code:
    https://www.facebook.com/mecfsbiobank/posts/2348822885165141


    https://twitter.com/user/status/1137005915771691008
     
    Andy, Jun 7, 2019
    #66
    Kitty, Snowdrop, Hutan and 9 others like this.
  7. mariovitali

    mariovitali Senior Member (Voting Rights)

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    516
    I am honoured and delighted to be a part of this effort.

    The CureME team during my presentation saw an opportunity in using text data they had from patient questionnaires. So after my presentation we started working on applying Named Entity Recognition (NER) to transform the text data to structured data.

    This transformation enabled us to enrich the patient data with supplement and medications information and analyse this data to see associations with symptoms and many more interesting insights. We now have the mechanism to do the same data transformation to hundreds of thousands of patient records within a few minutes !
     
    mariovitali, Jun 7, 2019
    #67
    ringding, andypants, oldtimer and 21 others like this.
  8. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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    wigglethemouse, Jun 7, 2019
    #68
    Kitty, oldtimer, Aroa and 8 others like this.
  9. mariovitali

    mariovitali Senior Member (Voting Rights)

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    516
    mariovitali, Jun 7, 2019
    #69
    Kitty, oldtimer, adambeyoncelowe and 8 others like this.
  10. Amw66

    Amw66 Senior Member (Voting Rights)

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    6,778
    Brilliant - thank you @mariovitali
     
    Amw66, Jun 7, 2019
    #70
    Kitty, adambeyoncelowe, ladycatlover and 4 others like this.
  11. mariovitali

    mariovitali Senior Member (Voting Rights)

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    516
    mariovitali, Jun 19, 2019
    #71
    Kitty, oldtimer, rvallee and 5 others like this.
  12. Andy

    Andy Committee Member

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    Andy, Aug 15, 2019
    #72
    andypants, Hutan, MEMarge and 19 others like this.
  13. Andy

    Andy Committee Member

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    Andy, Aug 19, 2019
    #73
    Sly Saint, Kitty, Hutan and 11 others like this.
  14. Andy

    Andy Committee Member

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    Andy, Oct 2, 2019
    #74
    Annamaria, MeSci, rvallee and 4 others like this.
  15. Andy

    Andy Committee Member

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    Andy, Oct 2, 2019
    #75
    Amw66, NelliePledge, mariovitali and 7 others like this.
  16. mariovitali

    mariovitali Senior Member (Voting Rights)

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    516
    I just got back from Philadelphia and wanted to share my experience in presenting our joint effort with the CureME team. We were the first to begin the sessions on Big data and Machine Learning applied to Healthcare with Kathleen Mudie from the CureME team giving a great presentation to around 60 people. At the end i joined Kathleen to answer the technical questions on the methodology we used.

    Someone from the CDC (Centers for Disease Control and Prevention) / National Center for Health Statistics approached us after the presentation and congratulated us for presenting a "trully groundbreaking" work, saying that these technologies will transform Healthcare in several ways. Usually there is a clash between Data Miners / Data Scientists vs Statisticians because -in all fairness- most techniques used have their core to statistics but him -being a statistician- was very open regarding these techniques.

    I also had the chance to explain to him more about my work and my attempt to research ME/CFS and was waiting for his comments almost in agony because he was very keen in identifying problems in the methodologies that others presented. Again, he said that this is groundbreaking work that should be published. His very positive reactions really gave me the strength to keep trying until finally someone accepts to apply these technologies to research ME/CFS more extensively.

    I want to Thank Kate Mudie and all of the CureME team for giving me this opportunity.

    IMG_4122.jpg Screen Shot 2019-11-07 at 06.22.36.png IMG_4120.jpg
     
    mariovitali, Nov 7, 2019
    #76
    Missense, oldtimer, MEMarge and 18 others like this.
  17. Trish

    Trish Moderator Staff Member

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    Trish, Nov 7, 2019
    #77
    oldtimer, MEMarge, NelliePledge and 10 others like this.
  18. Andy

    Andy Committee Member

    Messages:
    23,065
    Location:
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    Code:
    https://www.facebook.com/mecfsbiobank/posts/3110878808959541


    https://twitter.com/user/status/1271079744725856256
     
    Andy, Jun 11, 2020
    #78
    Michelle, Kitty, Invisible Woman and 6 others like this.
  19. Andy

    Andy Committee Member

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    https://www.meaction.net/2020/06/03/the-uk-me-cfs-biobank-a-rich-resource-of-samples-and-data/
     
    Andy, Jun 18, 2020
    #79
    Kirsten, Shinygleamy, Michelle and 6 others like this.
  20. Andy

    Andy Committee Member

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    23,065
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    https://meassociation.org.uk/2020/0...into-long-covid-and-me-cfs-at-the-me-biobank/

    Originally posted here, Possibility of ME or PVFS after COVID-19
     
    Andy, Sep 9, 2020
    #80
    It's M.E. Linda, MEMarge, obeat and 1 other person like this.
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