USA: Katie Brown

I would be cautious. This looks like a website anyone could set up. A real doctor's website will be on a university or clinic site, or at least have a lot of information available.

She has a handout for clinicians (see attachment) and she offers a 30-minute free call for them to get more information. The website also clearly states the address of her practice?
 

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A doctor named Katie Brown was interviewed by Raelan Agle. The description says "she fully recovered with ANS Rewire, and now uses her hard-won knowledge working with ME/CFS patients in her practice."


Yeah, that's her. I'm watching the episode now. I'm happy for her she's recovered. I just don't know what she can tell physicians to help them treat their patients.
 
Btw, I should probably do this digging before I ask on this forum. On the other hand, I think it might be useful for others to be able to find doctors etc here and see the discussion?

Personally, I sometimes need to hear it from forum members. Because whenever I'm in 'a crash', I start searching for cures again (only recently started to recognise the pattern) and then I feel some hope. Then I decide to post here for a reality check. I don't know. I still need this approach .
 
Yeah, that's her. I'm watching the episode now. I'm happy for her she's recovered. I just don't know what she can tell physicians to help them treat their patients.
I don't want anyone to tell physicians that brain retraining is the way out.
Btw, I should probably do this digging before I ask on this forum. On the other hand, I think it might be useful for others to be able to find doctors etc here and see the discussion?

Personally, I sometimes need to hear it from forum members. Because whenever I'm in 'a crash', I start searching for cures again (only recently started to recognise the pattern) and then I feel some hope. Then I decide to post here for a reality check. I don't know. I still need this approach .
I used to have that pattern, too.

I think it's good to have these things and views documented here. A lot of online spaces are echo chambers and vulnerable gullible patients are easy targets. There is no shortage of people advertising brain retraining and other scam on social media. It can be hard for newly diagnosed patients to spot it immediately, especially if they're sporadically checking the groups and discussions, so they don't notice the same accounts over and over praising their scam approaches.
 
Yes, thanks for posting @MinIreland. I think it is useful for the forum to build up a resource of analysis of the offerings of people claiming to provide ME/CFS clinical services.

Seems as though she had a brush with ME/CFS during her medical training years, and recovered.

She has sought mentorship and advanced training to refine her approach, including participation in the Long COVID iECHO group, workshops with Dr. Raymond Perrin on lymphatic drainage massage, and regular consultation with Dr. Peter Rowe of Johns Hopkins and physical therapist Wendy Wagner. Dr. Brown has successfully supported disability cases, improved quality of life for patients, and helped a small number achieve remission.

WHAT SORTS OF TREATMENT RECOMMENDATIONS DOES DR. BROWN PROVIDE?​

ME/CFS is a complex, chronic condition without a universal cure. The goal of treatment is to improve quality of life while minimizing medical and financial harm. Dr. Brown prioritizes evidence-based treatments first, followed by safe, low-cost experimental options, and considers more expensive experimental therapies only when the potential benefits clearly outweigh the risks. She generally avoids high-risk interventions and costly functional medicine–style testing.

Her approach draws on a wide range of strategies tailored to the individual patient, including prescription and over-the-counter medications, supplements and vitamins, manual therapies like lymphatic drainage massage, behavioral strategies such as pacing, mind-body techniques including stress reduction and meditation, procedures like stellate ganglion blocks, and surgeries such as cervical fusion. She can also support patients with long-term disability applications.

Treating ME/CFS requires comfort with uncertainty. Strong evidence is limited for many interventions, but there are safe and experimental options at every level of severity. With the right approach, many patients can improve their quality of life.

That's quite a list of very dubious treatments, including cervical spine fusion.
 
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I don't want anyone to tell physicians that brain retraining is the way out.

I used to have that pattern, too.

I think it's good to have these things and views documented here. A lot of online spaces are echo chambers and vulnerable gullible patients are easy targets. There is no shortage of people advertising brain retraining and other scam on social media. It can be hard for newly diagnosed patients to spot it immediately, especially if they're sporadically checking the groups and discussions, so they don't notice the same accounts over and over praising their scam approaches.
She actually says in the interview that she does NOT believe in brain retraining. She says she believes that brain retraining encourages you to push through, like 'mind over matter', and that that's harmful.
 
She actually says in the interview that she does NOT believe in brain retraining. She says she believes that brain retraining encourages you to push through, like 'mind over matter', and that that's harmful.
That's very interesting because that's not what the description of the video implies. But I guess the video description was out of her hands.
 

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That's very interesting because that's not what the description of the video implies. But I guess the video description was out of her hands.
She did the program, and she mentions it in the interview. She says that parts of it helped her, but that she didn't use the brain retraining stuff. Then in the comments of the interview, she responds to a listener who claims that brain retraining is great, blah blah. Katie Brown then replies that she disagrees, basically because you're telling your body that it's 'wrong', which leads to pushing, which is obviously harmful.
 
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