Vitamin D status in chronic fatigue syndrome/myalgic encephalomyelitis: a cohort study from the North-West of England

A narrow look at vit D. It underwrites around 5% of your whole genome and is integral to immune system. It would perhaps have been better to look at levels when first diagnosed .

We had to push to be taken seriously requesting this and had some very sheepish faces at the surgery when results came back.

 

Yes, my levels are normal NOW.... because I take quite a bit. Even if you tell the patient to stop taking supplements, Vit D levels take awhile to drop. Note there's no mention (that I can find, happy to be corrected) of whether or not patients were taking anything.

Note this is UK, they used Chalder fatigue scale, probably used Oxford dx.

All together this means not worth the pixels it's rendered with.

 

The summary says: "Analysis of food/supplement diaries with WinDiets revealed that the higher total 25(OH) vitamin D concentrations observed in the CFS/ME group were associated with increased vitamin D intake through use of supplements compared with the control group."

 

Sorry, @MeSci -- are you saying that ppl who were taking Vit D were, or were not included when they were determining who was low?

If those ppl were included OR excluded that's bad science, though:

1) Included -- well of course their Vit D wasn't low; they are taking it
2) Excluded -- well of course the rest of the group shows no sign of low Vit D -- the ones who had low Vit D were taking it

Vitamin D being low is one of the most common causes of chronic fatigue, the symptom. I was tested for it very early on. Since it was low, I was advised to start taking supplements. I'm sure this is the case for many, many others.

 

I have no idea.

 

That might explain why a very young child in the UK died of rickets recently :

https://www.shropshirestar.com/news...er---rickets-caused-telford-baby-noahs-death/

 

?! ... weird!

 

Perhaps their point is that hypovitaminosis D is not causing their patients' chronic fatigue in which case yes, they've made their case.

Here is other research, also UK, done better; all of these have noted marked depression of Vit D levels in patients:

https://www.ncbi.nlm.nih.gov/pubmed/25455721
https://www.ncbi.nlm.nih.gov/pubmed/20209476

Interestingly a study on "chronic fatigue" (the symptom) showed a correlation between low Vit D and orthostatic intolerance, which many studies have noted has a high incidence in ME/CFS:

https://www.ncbi.nlm.nih.gov/pubmed/21886073

 

Vitamin D is the only supplement I take. I'm able to get outside so little that it seems a sensible thing to do. I've got CFS... I need to take at least one pill of some sort a day!

 

Yes, in UK it' s associated with bone health.

 

I asked a GP at my surgery for a vit D test. I had already been supplementing with D3. She understood when I explained why it would be very reasonable in my case to check it but said that 'they' often refused to do the test because of the cost. Together we wrote a detailed account of why I needed it to prevent refusal and it went through ok.

(I looked up on line and I could have had it done myself for about £80-£90.)

When the results came, the GP misunderstood the results (I don't think she had any experience with vit D tests at all, and hadn't looked it up)

The results showed low D2 and lowish D3. She was a bit concerned that my levels were low given that I was supplementing and decided to refer me to a specialist. The (very nice) consultant explained that there was nothing wrong with my vitD levels because you have to add together the D2 and D3! He told me to carry on with what I was doing, and wrote a nice letter to my GP putting her right.

Wasted NHS appointment, wasted time and energy, husbands time off work, PEM. Sigh.

 

UK vit D " normal range" is very low ( as it is based on bone health). So normal dosn' t count for much.

 

True. I increased my D3 following my test for that reason. I don't think I would be able to get another test on the NHS.

 

http://vitamindtest.org.uk/index.html

Birmingham uni does home test kits at a reasonable cost

 

Now that's interesting! When I looked online, and it was maybe 3 or 4 years ago(?) there was nothing available as cheaply as that, and I think it was somewhere in Birmingham that I considered. Same place? Anyway, it indicates to me that there has been a demand for vit D testing such that it's worthwhile to develop it (shiny webpage) and lower prices. That's good, thanks for posting.

 

I don' t know how recent it is. I habe a friend who is studying nutritional therapy and gets her levels tested there every year- so perhaps a couple of years