website: Society to Improve Diagnosis in Medicine

[Ravn]

Don't think I've seen this discussed here?

Society to Improve Diagnosis in Medicine: https://www.improvediagnosis.org/

Appears to be US based. May be an advocacy opportunity for someone, especially the patient engagement bit? Have only skimmed the site and found no mention of ME.

SIDM is partnering with Stanford University and Patients Improving Research in Diagnosis (PAIRED) Patient Partners to conduct a two-year project to explore and address disparities in diagnosis related to cognitive reasoning pitfalls.

SIDM's PAIRED program brings together patient advocates with lived experience and expert researchers to integrate the patient perspective in research efforts.

SIDM and its collaborative partners developed a research project utilizing deliberative approaches to engage healthcare consumers in developing patient-focused recommendations for improving diagnostic quality.

Patient stories guarantee the patient voice is heard in efforts to improve diagnostic quality and safety. SIDM is highlighting stories from patients who have experienced diagnostic error.

https://www.improvediagnosis.org/patient-engagement/