I’m off to see a Neurologist ( privately) who sees MS and Long COVID patients. Since he looks about 40 I am hoping he’s open minded and interested.
This was really instigated because the Immunolgy dept at John Radcliffe, Oxford offered me an appointment one day in June this year, then the next day they cancelled it, telling me to contact my GP to find out the reason. From GP I was told they don’t treat ME patients. I was really knocked sideways by the stress of that and it took me around 2 months to get back on track. Ho hum….on it goes.