Yann04
Senior Member (Voting Rights)
The most popular questionnaire for PEM is the De-Paul Symptom Questionnaire, which, to be frank, is not the best, as it mostly focuses on fatigue after exertion and seems to flag an unlikely proportion of people with other illnesses having PEM.
It seems there isn’t much competition. The FUNCAP Scale is excellent for measuring disability in people with PEM, but is ill suited to diagnose PEM itself. Davenport’s team made a similar questionnaire that might serve as an outcome measure for functional capacity related to PEM but is not exactly suited to measure if a person has PEM.
Obviously, in an ideal world, PEM would be flagged based on clinical observations, but we’re operating in an environment in which 99% of clinicians would not recognise PEM if the most classical description was provided to them, nor do I trust researchers to discern PEM. So I’m creating this thread so we can discuss how we would make a scale for determining if an individual has PEM or not.
It seems there isn’t much competition. The FUNCAP Scale is excellent for measuring disability in people with PEM, but is ill suited to diagnose PEM itself. Davenport’s team made a similar questionnaire that might serve as an outcome measure for functional capacity related to PEM but is not exactly suited to measure if a person has PEM.
Obviously, in an ideal world, PEM would be flagged based on clinical observations, but we’re operating in an environment in which 99% of clinicians would not recognise PEM if the most classical description was provided to them, nor do I trust researchers to discern PEM. So I’m creating this thread so we can discuss how we would make a scale for determining if an individual has PEM or not.
Last edited: