AliceLily
Senior Member (Voting Rights)
Is this more likely due to an immune system problem?
For me there came a point where after many years with very severe ME where resting finally helped to move me down a level.
I am now over 25 years into ME and would describe myself as moderate with the very odd severe bout. I have a resting routine where I lie down in the afternoon and evening every day apart from the odd time where I may have an appointment. I should add if home in the morning I will be found sitting upright/lying down in bed throughout the morning as well. This is how I manage to stay at this level of moderate.
If I were to increase activity every day I would eventually deteriorate back to severe again. I know this because I have lived with ME for many years and know how it operates.
What systems in the body would act like this where improving takes so long, years and years?
And why there is so much absurd amount of resting required to improve levels of ME.
For me there came a point where after many years with very severe ME where resting finally helped to move me down a level.
I am now over 25 years into ME and would describe myself as moderate with the very odd severe bout. I have a resting routine where I lie down in the afternoon and evening every day apart from the odd time where I may have an appointment. I should add if home in the morning I will be found sitting upright/lying down in bed throughout the morning as well. This is how I manage to stay at this level of moderate.
If I were to increase activity every day I would eventually deteriorate back to severe again. I know this because I have lived with ME for many years and know how it operates.
What systems in the body would act like this where improving takes so long, years and years?
And why there is so much absurd amount of resting required to improve levels of ME.
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