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Work Rehabilitation and Medical Retirement for [ME/CFS] Patients. A Review and Appraisal of Diagnostic Strategies, 2019, Vink et al

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, Sep 20, 2019.

  1. TiredSam

    TiredSam Committee Member

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    On the rare occasion that a woman did get sick, the house would be invaded by other women (maiden aunts and the like) to look after her.
     
  2. Mark Vink

    Mark Vink Established Member (Voting Rights)

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    Thank you for your compliments and comments. As far as older age and prognosis is concerned, your concerns about that are answered in the text (see attached screenshot)
     

    Attached Files:

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  3. Ravn

    Ravn Senior Member (Voting Rights)

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    @Mark Vink, is this sentence correct or did some gremlins get in? It seems counterintuitive that being more functional early on would be indicative of being less functional later.
     
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  4. rvallee

    rvallee Senior Member (Voting Rights)

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    That should probably read "increased pain and lower physical function"?
     
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  5. Mark Vink

    Mark Vink Established Member (Voting Rights)

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    Hi I can see what you mean; here you can see where it comes CRAWLEY NHSoutcome2013.png
     
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  6. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Good points. However, part of the reason there are so many such services is because patients and some patient organisations pushed for services at a time when there was no obvious disease-modifying drug while CBT and GET appeared to have lots of support from RCTs.
     
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  7. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Absolutely. Unfortunately, every so often you'll see some local patient group or other lobbying for more/better services and treatment. In the current situation that means more of the same and, worse still, the powers that be and the likes of Crawley et al can then claim that patients asked for those services. :banghead:

    They didn't really understand what they were asking for and because they swallowed the story of people like us being "militant activists" , they didn't bother to investigate the politics or the consequences of what they were demanding.

    Edit - spelling
     
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  8. Dolphin

    Dolphin Senior Member (Voting Rights)

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    (Not important at all)

    I was curious about this sentence:

     
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  9. Dolphin

    Dolphin Senior Member (Voting Rights)

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    In case anyone is curious about what the following is based on:
    This is the section from the paper that I recall dealt with this:
    ----
    I'm not sure any empirical findings are mentioned with regard to this.
     
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  10. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  11. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  12. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    From a Dutch ME/CFS study:
    https://twitter.com/user/status/1236006649158086656
     
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  13. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  14. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  15. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  16. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  17. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Minor point:
    There has been no change in my employment situation 47.2% (186/394)
    I have been able to return to work or increase my hours 18.0% (71/394)
    I have stopped working or reduced my hours because of CFS/ME 30.0% (118/394)
    I have stopped working or reduced my hours for other reasons 4.8% (19/394)


    Really, Collin and Crawley should have sub-divided:
    I have been able to return to work or increase my hours
    into
    I have been able to return to work or increase my hours because of CFS/ME
    I have been able to return to work or increase my hours for other reasons


    Some people might have been out of work or had reduced hours due to caring duties of one sort or another e.g. parental leave. They might now be doing more hours because the caring responsibilities may have reduced, but their CFS/ME may not have improved. So the real difference may be more than 12%. But I suppose papers have word limits, so the authors of the current paper can't make all the points they might like to make about other data.
     
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  18. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  19. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Might be useful for people who are trying to build up a case to get early retirement:

     
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  20. Dolphin

    Dolphin Senior Member (Voting Rights)

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