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MEAction Scotland - Stakeholder review of NICE 2021 ME/CFS Guideline to prepare for Scottish implementation - deadline 1 March 2022
Amw66
,
Feb 23, 2022
Replies:
1
Views:
723
Amw66
Mar 7, 2022
Lobbying European Community for funding for ME/CFS Research
FMMM1
,
Jan 4, 2019
Replies:
8
Views:
1,575
FMMM1
Mar 31, 2022
[National Institute of Health] Community Advisory Committee – Guidelines for the Design of Clinical Studies in ME/CFS
Andy
,
Apr 15, 2022
Replies:
3
Views:
1,101
Samuel
Apr 20, 2022
Help needed: Send messages to Hungarian pwME for my ME Awareness Day project
Wyva
,
Apr 27, 2022
...
2
Replies:
23
Views:
1,464
Sarah
May 8, 2022
Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022
Andy
,
May 10, 2022
Replies:
1
Views:
855
Arnie Pye
May 10, 2022
‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay
Phoebe
,
May 20, 2022
Replies:
0
Views:
1,082
Phoebe
May 20, 2022
UK: Priority Setting Partnership for ME/CFS
Andy
,
Mar 10, 2020
...
10
11
12
Replies:
232
Views:
25,088
bobbler
May 21, 2022
USA: #MEAction: Email Doctor Unger about the Misinformation at CDC
Sly Saint
,
May 28, 2022
Replies:
0
Views:
735
Sly Saint
May 28, 2022
Help with Advocating - responding to claims that ME is a psychological illness
Tara Green
,
May 25, 2022
Replies:
16
Views:
1,472
Tara Green
May 31, 2022
Exploration of the idea of a register of patient advocates
Andy
,
May 27, 2022
...
2
Replies:
23
Views:
1,735
MSEsperanza
Jun 7, 2022
Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)
Sly Saint
,
Jul 2, 2022
Replies:
0
Views:
761
Sly Saint
Jul 2, 2022
Problematic training courses - please add
Sly Saint
,
Jan 5, 2018
...
2
3
Replies:
52
Views:
8,059
Sly Saint
Jul 7, 2022
marketing I like for women's sport - could this sort of thing work for ME?
bobbler
,
Aug 4, 2022
Replies:
0
Views:
823
bobbler
Aug 4, 2022
M.E. and me (My Story as a Teen with ME/CFS) - Youtube Channel
RoseE
,
Aug 18, 2022
Replies:
3
Views:
970
Sly Saint
Aug 19, 2022
Bing ME/CFS information
Sly Saint
,
Oct 18, 2022
Replies:
0
Views:
713
Sly Saint
Oct 18, 2022
Funding of ME/CFS research in the UK
Sly Saint
,
Feb 21, 2018
...
2
3
4
Replies:
73
Views:
7,951
Andy
Oct 21, 2022
A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?
Andy
,
Oct 5, 2019
...
2
3
Replies:
59
Views:
8,286
Trish
Dec 3, 2022
Updated - The PACE trial: Harm Video
Adam pwme
,
Apr 22, 2020
Replies:
17
Views:
2,793
Sly Saint
Dec 9, 2022
Requests for information/papers/sources/documentation
rvallee
,
Jun 10, 2021
...
2
Replies:
22
Views:
3,300
RedFox
Dec 19, 2022
United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines
Andy
,
Aug 18, 2022
...
2
Replies:
25
Views:
3,565
Fainbrog
Dec 29, 2022
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