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‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay
Phoebe
,
May 20, 2022
Replies:
0
Views:
1,260
Phoebe
May 20, 2022
UK: Priority Setting Partnership for ME/CFS
Andy
,
Mar 10, 2020
...
10
11
12
Replies:
232
Views:
27,626
bobbler
May 21, 2022
USA: #MEAction: Email Doctor Unger about the Misinformation at CDC
Sly Saint
,
May 28, 2022
Replies:
0
Views:
893
Sly Saint
May 28, 2022
Help with Advocating - responding to claims that ME is a psychological illness
Tara Green
,
May 25, 2022
Replies:
16
Views:
1,750
Tara Green
May 31, 2022
Exploration of the idea of a register of patient advocates
Andy
,
May 27, 2022
...
2
Replies:
23
Views:
2,126
MSEsperanza
Jun 7, 2022
Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)
Sly Saint
,
Jul 2, 2022
Replies:
0
Views:
958
Sly Saint
Jul 2, 2022
Problematic training courses - please add
Sly Saint
,
Jan 5, 2018
...
2
3
Replies:
52
Views:
8,887
Sly Saint
Jul 7, 2022
marketing I like for women's sport - could this sort of thing work for ME?
bobbler
,
Aug 4, 2022
Replies:
0
Views:
952
bobbler
Aug 4, 2022
M.E. and me (My Story as a Teen with ME/CFS) - Youtube Channel
RoseE
,
Aug 18, 2022
Replies:
3
Views:
1,131
Sly Saint
Aug 19, 2022
Bing ME/CFS information
Sly Saint
,
Oct 18, 2022
Replies:
0
Views:
811
Sly Saint
Oct 18, 2022
Funding of ME/CFS research in the UK
Sly Saint
,
Feb 21, 2018
...
2
3
4
Replies:
73
Views:
8,782
Andy
Oct 21, 2022
A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?
Andy
,
Oct 5, 2019
...
2
3
Replies:
59
Views:
8,915
Trish
Dec 3, 2022
Updated - The PACE trial: Harm Video
Adam pwme
,
Apr 22, 2020
Replies:
17
Views:
3,047
Sly Saint
Dec 9, 2022
United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines
Andy
,
Aug 18, 2022
...
2
Replies:
25
Views:
3,992
Fainbrog
Dec 29, 2022
2023 Washington Post article: 'For Long Covid fatigue, a strategy called 'pacing' helps, but at a cost
wabi-sabi
,
Jan 18, 2023
Replies:
2
Views:
1,855
ahimsa
Jan 19, 2023
ME Awareness Day / Week / Month, May 2022
Andy
,
Feb 28, 2022
...
2
3
Replies:
41
Views:
7,678
Andy
Feb 5, 2023
EU protests: request for pictures
TiredSam
,
Feb 28, 2023
Replies:
2
Views:
1,834
Dolphin
Mar 5, 2023
UK: Campaign called #MPDoYourJobForME
ahimsa
,
Mar 22, 2023
Replies:
0
Views:
1,269
ahimsa
Mar 22, 2023
New Zealand: HealthInfo ME/CFS pages - feedback please before 25 May 2022
Hutan
,
May 19, 2022
Replies:
13
Views:
2,052
Subtropical Island
Apr 23, 2023
Instagram profile: Illustrating M.E.
Kalliope
,
Apr 29, 2022
Replies:
7
Views:
1,584
Midnattsol
May 19, 2023
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