New official #MillionsMissing campaign video 2018

Russell Fleming said:
Aside from the fact we have been so very busy getting the message out in national and local press, on BBC TV and BBC Radio, on ITV etc. etc. We never had anyone from MissingMillions get in touch with us asking that we promote their demonstration on our social media platforms.

If you've seen any of our Facebook and Twitter posts you'll see we're pretty good at carrying initiatives that we support, but we do rely on others getting us drafts, or promotional posters etc. in the first place. We have also worked closely with Jen Brea and her team promoting Unrest - I'd argue we've been more supportive than any other UK charity - and have promoted any Unrest event we are informed about.

There are a couple MissingMillions events on our ME Awareness Week Events Guide, and several ME Association trustees are attending demonstrations in Edinburgh and London, but we just don't have time, especially now, to go chasing around for information.

So, if you want something promoted across our networks, then I suggest you send a draft (including photos etc.) to me first - or contact me via @meassociation on Facebook or Twitter. I think all the issues we are promoting are shared by #missingmillions and #MEAction so it's not like we are at odds with one another.

In fact we've been working closely on the preparation for the (intended) parliamentary debate - the EDM for which was launched the other day. If #MissingMillions appears in any press then I will try and post it on our media - like I have the BristolCable interview from yesterday.

In the build up to MEAW and in recent days, we have all been working flat out. Dr Shepherd is in Northern Ireland now, helping promote Unrest (again). If the media do carry any of the demonstrations tomorrow, then I will report them.
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To be honest I think that's a bit of a cop out Russell. We have general awareness raising year after year , MM offers the chance for something new and direct.

"If #MissingMillions appears in any press then I will try and post it on our media"

MEA social media is constantly posting all manner of things such as toy dogs travelling, blankets made, blogs about work, but you will "try' to post something from MM after the event has happened , when the thousands of people you could have mobilised into action can't attend into making it a successful event.

I copied a post from millions missing about two days ago when I saw nothing happening on SM, the one with the flyer advertising all the cities involved and put on your wall. You could easily have copied it over as you do other posts. The first year of #MM Andy was repeatedly posting and asking you to advertise it and you didn't. This is a massive global movement you've known about all year and you don't think that making a move to share it with your members is important? You have a journalist request on your page for national news that's not been answered because your members haven't been told. It's a massive opportunity lost To mr, MM was a big part of the unrest film etc that you've been promoting, your promotion of that has been good but why not join in the call for direct action. ? top staff at SMCI & OMF have committed? It seems MEA doesn't want to be part of it but it seems odd there's not been commication between the groups on this. AFME have hardly featured it either . AFME & MEA have combined reach of 30 000+ via Facebook.
 
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@JenB I'm sorry you were not well enough to be with us today in Santa Monica but was happy to hear you via the iPad.

I told Omar that after 34 years of living with ME/CFS, but in the main keeping it a secret lest it kill off my career in the television and film industry here in Los Angeles, that you and your film Unrest helped inspire me to step out of the shadows and to be open about my reality. That means a lot.

You've done so much to raise awareness and I appreciate it from the bottom of my heart!

I hope you feel better soon,

Bill
 
Cinders66 said:
Many of the unrest screenings have had fundraising for MEA as part of it too, so it's not without personal interest
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I'm very grateful for the work of @JenB in creating and promoting Unrest (the latter being the harder part, from personal experience) and that she's used income from the film to help build an ongoing organization to work in the interests of those of us with ME/CFS.

Bill
 
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