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Open Letters and Replies

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  1. Andy
    Sticky

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Andy, Jan 23, 2018 ... 7 8 9
    Replies:
    165
    Views:
    25,700
    Lucibee
    Aug 9, 2023
  2. Science For ME
    Locked Sticky

    S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS Exercise Therapy Review

    Science For ME, Aug 28, 2023 ... 2
    Replies:
    31
    Views:
    12,578
    Science For ME
    Apr 9, 2024
  3. Science For ME
    Sticky

    S4ME: Submission to the public review on Common Data Elements for ME/CFS: Concerns with the proposed measure of post-exertional malaise

    Science For ME, Feb 2, 2018 ... 2
    Replies:
    26
    Views:
    7,376
    Andy
    Feb 4, 2018
  4. Science For ME
    Sticky

    S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement

    Science For ME, Nov 14, 2019 ... 2
    Replies:
    23
    Views:
    3,899
    Andy
    Jun 1, 2020
  5. Science For ME
    Locked Sticky

    Open letters to the UK ME Association trustees about a research project developing PROMs, led by Sarah Tyson

    Science For ME, Apr 2, 2024
    Replies:
    4
    Views:
    2,548
    Trish
    Apr 6, 2024
  6. Andy

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Andy, Jan 16, 2018 ... 16 17 18
    Replies:
    340
    Views:
    36,329
    Trish
    Jul 30, 2018
  7. Carly Maryhew

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Carly Maryhew, Dec 15, 2017 ... 11 12 13
    Replies:
    241
    Views:
    39,055
    Inara
    Jan 16, 2018
  8. Trish

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Trish, Jan 12, 2019 ... 9 10 11
    Replies:
    209
    Views:
    28,215
    PhysiosforME
    Oct 24, 2019
  9. Graham

    Bristol - New Network - Prof Munafo

    Graham, Sep 18, 2018 ... 5 6 7
    Replies:
    135
    Views:
    17,004
    MSEsperanza
    Mar 11, 2022
  10. Webdog

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Webdog, Jan 24, 2018 ... 4 5 6
    Replies:
    110
    Views:
    17,384
    Allele
    Apr 30, 2018
  11. Graham

    Proposed Letter to NICE

    Graham, Dec 22, 2017 ... 4 5 6
    Replies:
    105
    Views:
    15,278
    Invisible Woman
    Feb 1, 2018
  12. Jonathan Edwards

    Submission to the Scottish Parliament by Jonathan Edwards

    Jonathan Edwards, Jul 7, 2018 ... 4 5 6
    Replies:
    104
    Views:
    15,469
    Emsho
    Jul 19, 2018
  13. Trish

    A personal letter to the NIH team researching ME/CFS about their PEM study, 2020

    Trish, Oct 6, 2020 ... 2 3
    Replies:
    42
    Views:
    6,059
    shak8
    Dec 3, 2020
  14. Trish

    Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

    Trish, Nov 7, 2019 ... 2
    Replies:
    36
    Views:
    4,493
    Snow Leopard
    Nov 12, 2019
  15. Science For ME

    S4ME letter to NICE and Replies, re: "three members of the ME/CFS Guideline Committee have a conflict of interest"

    Science For ME, Nov 30, 2018 ... 2
    Replies:
    27
    Views:
    4,640
    ME/CFS Skeptic
    Mar 24, 2019
  16. Trish

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Trish, Oct 20, 2019 ... 2
    Replies:
    24
    Views:
    4,060
    rogerblack
    Dec 1, 2019
  17. Kalliope

    MEAction: The NIH responds to #MEAction, next steps

    Kalliope, Jul 19, 2018 ... 2
    Replies:
    21
    Views:
    3,679
    Dolphin
    Jul 21, 2018
  18. Andy

    UK: Open Letter: Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.)

    Andy, Feb 14, 2024
    Replies:
    19
    Views:
    1,150
    Jonathan Edwards
    Apr 17, 2024
  19. Andy

    OPEN LETTER TO DR. NYE ( Clinical Champion, Liverpool ME/CFS Clinical Network Co-ordinating Centre), c. 2007

    Andy, Feb 2, 2018
    Replies:
    12
    Views:
    2,729
    Luther Blissett
    Feb 3, 2018
  20. Science For ME

    S4ME Letter to Nice Concerning Chris Burton

    Science For ME, Jan 21, 2019
    Replies:
    11
    Views:
    3,850
    Trish
    Dec 20, 2022
  21. Trish

    Letter to Prof. Hugh Brady, VC Bristol University, Nov 2016

    Trish, Dec 15, 2017
    Replies:
    11
    Views:
    2,908
    Esther12
    Dec 16, 2017
  22. brf

    Open Letter Video to Prime Minister Trudeau: May 2018

    brf, May 7, 2018
    Replies:
    10
    Views:
    2,398
    DokaGirl
    Dec 15, 2018
  23. Barry

    My letter to The Lancet in response to the GETSET publication

    Barry, Dec 14, 2017
    Replies:
    8
    Views:
    1,952
    Barry
    Dec 15, 2017
  24. MyalgicE

    ME Australia’s submission to the National Health and Medical Research Council on their draft report

    MyalgicE, Mar 25, 2019
    Replies:
    7
    Views:
    1,611
    BruceInOz
    Mar 26, 2019
  25. Andy

    Open Letter: 74 International experts urge Dutch Minister of Health to make substantial long term investment in biomedical research

    Andy, Jul 17, 2018
    Replies:
    3
    Views:
    1,879
    Esther12
    Jul 19, 2018
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