Open personal letter to the trustees of the UK ME Association, December 2024

That sounds lovely.
So you just keep logging on every day in the hope that your question is added and some sub-par whitewash answer accompanies it.

 

Sounds very patronising.

 

Using the Q&A section on their website may be helpful to communicate a more substantial amount of information at one go, but as it stands I doubt it would help with ongoing communication issues. Firstly it would not be obvious to a casual reader when more information was added or what is new; secondly it offers no channel for ongoing discussion of these issues and thirdly it’s relatively obscure location and the associated/intervening page titles mean even if you know it exists this section is not straight forward to find.

It would make more sense for it to be directly linked to as a news item with new news notices on the front page of the site whenever it was updated.

 

Let’s face it, they don’t think they should have to engage with the membership. And they don’t want to.

 

PDF copy of my email of 03 January 2025

To: Neil Riley; Dr Charles Shepherd
CC: Russell Fleming


https://dxrevisionwatch.com/wp-cont...il-riley-charles-shepherd-russell-fleming.pdf

I will update when I have a response.