Recent Activity
Activity stream for all registered members at Science for ME.
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alktipping liked Yann04's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
As a very severe bedridden and mute person, this and the lack of acknowledgment of severity is suprising. Also the treatment of diet as...
May 21, 2024 at 10:34 PM -
Amw66 replied to the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
Karen from Physios for ME on X [MEDIA] A new term used in defense of this process is "anti-recovery activists" which is the most...
May 21, 2024 at 10:33 PM -
rvallee liked NelliePledge's post in the thread Functional Neurological Disorder (FND) - articles, social media and discussion.
If you’re open to support from a range of health professionals working within the existing NHS structures then you don’t look a gift...
May 21, 2024 at 10:33 PM -
alktipping liked Ebb Tide's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
Why is the section on activity management in the transcript accompanied by a cartoon of what appears to be someone doing star jumps?
May 21, 2024 at 10:33 PM -
alktipping liked Trish's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
I haven't tried the module but I have looked through the article which outlines what's in the module. My main comment is there's too...
May 21, 2024 at 10:33 PM -
alktipping liked Kitty's post in the thread ME Association: NHS England Launches New E-learning Module on ME/CFS!.
On an initial skim-through through it looks okay, though I haven't read it in detail. The first sentence is somewhat problematic...
May 21, 2024 at 10:33 PM -
Amw66 liked rvallee's post in the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
What about from people who are medically qualified? Saying the exact same thing? Publishing research saying the exact same thing?...
May 21, 2024 at 10:32 PM -
Amw66 liked rvallee's post in the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
Unfortunately this is by far the biggest problem here: it's not. This is now accepted modern neuroscience and health care. It's 100%...
May 21, 2024 at 10:32 PM -
alktipping liked Mij's post in the thread Two Million Brits Suffer LC and a Third Have Had it for More Than Three Years – yet Pleas for Extra Funding Rejected.
Groups representing UK sufferers are “very disappointed” as the US recently allocated another $515 million in research funding for what...
May 21, 2024 at 10:31 PM -
Amw66 liked Adam pwme's post in the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
[MEDIA]
May 21, 2024 at 10:30 PM -
alktipping liked Yann04's post in the thread Nova News: Long Covid doubles the risk of hospitalization: over 4.200 deaths from this condition.
Article from what seems to be an Italian news source:...
May 21, 2024 at 10:30 PM -
Deanne NZ liked rvallee's post in the thread COFFI - The international collaborative on fatigue following infection.
This relates to a recent BBC report on the LP: BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and...
May 21, 2024 at 10:29 PM -
alktipping liked Leila's post in the thread Osteoporosis - Is anyone taking meds?.
Hi! I was diagnosed with osteoporosis via DXA Scan in 2019 at age 32. I've been having ME since age 22 and developed endometriosis,...
May 21, 2024 at 10:27 PM -
Trish liked Deanne NZ's post in the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
@Hutan that is intriguing about Rachel Whitfield being the LP recovered person. I was not aware of her previously but on listening to...
May 21, 2024 at 10:27 PM
