Recent Activity
Activity stream for all registered members at Science for ME.
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DigitalDrifter replied to the thread Lightning Process - discussion thread.
https://www.bbc.com/news/health-69040592.amp
May 21, 2024 at 12:43 PM -
RaviHVJ replied to the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
One other small detail I really like about the piece and that quote. When Parker talks about "anti-recovery activists," he's probably...
May 21, 2024 at 12:40 PM -
Trish replied to the thread The “Permanent Worsening” Phenomenon.
You're right, but any of us with long term worsening can't see into the future. Some people with very severe ME/CFS for years do...
May 21, 2024 at 12:40 PM -
DigitalDrifter replied to the thread The “Permanent Worsening” Phenomenon.
Trish it says long term but not permanent. I've never seen a published paper say permanent. The closest I've seen is this:...
May 21, 2024 at 12:38 PM -
JellyBabyKid liked ukxmrv's post in the thread UK: Contaminated Blood scandal.
Coming across the Hillsborough Law (mentioned in relation to the Blood Inquiry). https://hillsboroughlawnow.org/what-we-do
May 21, 2024 at 12:37 PM -
JemPD liked Joan Crawford's post in the thread What are the necessary conditions and criteria for a theoretical model of ME/CFS?.
This is the overwhelming presentation in clinic. Patients repeatedly try and do x or y. Endlessly. Doom loop of try, fail. Rest up...
May 21, 2024 at 12:36 PM -
JellyBabyKid liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
That was my thought at the start of the project- yay let’s get rid of the Chalder questionnaire. But hey it’s not as bad as Chalder...
May 21, 2024 at 12:32 PM -
cfsandmore liked ME/CFS Skeptic's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
Twitter thread summary of the preprint: [MEDIA] 1) Interesting new study from Canada from the research team of Luis Nacul. The authors...
May 21, 2024 at 12:29 PM -
NelliePledge replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
That was my thought at the start of the project- yay let’s get rid of the Chalder questionnaire. But hey it’s not as bad as Chalder...
May 21, 2024 at 12:27 PM -
Eleanor liked RaviHVJ's post in the thread BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program.
I was very impressed by the article. It was stronger than what I'd expect from the BBC. It's quietly damning, which is always good for a...
May 21, 2024 at 12:26 PM -
Caroline Struthers liked NelliePledge's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Why have we changed the process :whistle:
May 21, 2024 at 12:24 PM
