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  1. wdb

    The $100 million challenge

    It's probably not enough, take MS for example the NIH alone spends over $100M a year on research and no cure yet. But to answer the question I'd have them keep studying the bodies of ME sufferers and healthy people after exercise until they find something different that might point to a disease...
  2. wdb

    We’re Incentivizing Bad Science (Scientific American)

    We’re Incentivizing Bad Science Current research trends resemble the early 21st century’s financial bubble ... Unless and until leadership is taken at a structural and societal level to alter the incentive structure present, the current environment will continue to encourage and promote wasting...
  3. wdb

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    Have to say I'm also a bit unsure about this. It sounds like we have quite a limited understanding of what brainwaves mean https://en.wikipedia.org/wiki/Electroencephalography#Wave_patterns along with a lot of artefacts making it difficult to measure them...
  4. wdb

    Open Trial of Vitamin B12 Nasal Drops in Adults With [ME/CFS]: Comparison of Responders and Non-Responders, 2019, van Campen et al

    I really dislike this trend of dividing up a group into supposed responders and non-responders, without a proper control group there is no way of determining if this is a response to treatment or placebo or statistical noise, you can chop any bell curve down the middle and call the top half...
  5. wdb

    Science: "Meet the ‘data thugs’ out to expose shoddy and questionable research"

    Dodgy sex-psychology paper finally gets retracted Research on men helping high-heeled women pulled because of sloppy data. Two years ago, Ars published a story about some famous psychology research that smelled... off. Psychologist Nicolas Guéguen's flashy findings on human sexuality appeared...
  6. wdb

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Who gets to define what counts as an RCT as in what organisation has the ultimate authority to say if a trial does or does not meet the criteria ? Looking at definitions such as on Wikipedia for example I do worry the bar is set quite low. Another example from cochrane Randomised controlled...
  7. wdb

    Brain inflammation

    It could all just be down to energy supply, all of our bodily processes consume energy the brain especially, if we can't we can't supply enough energy to our legs to work properly maybe the same is true of our brains.
  8. wdb

    Brain inflammation

    I'm curious, do humans actually have the ability to specifically feel the brain hurting or to feel it being inflamed, how does that feel different from various common types of headache ?
  9. wdb

    Comment: Psychiatry’s stance towards scientifically implausible therapies: are we losing ground?, 2019, Rosen et al

    The truth is that psychiatry and alternative medicine have both been up to exactly the same tricks to game RCTs and guarantee positive outcomes. Both do not properly control for placebo and bias, rely on self-reported measures, deliberately tell the participants the result they are expecting...
  10. wdb

    MEAction: Join Our Values and Policy Initiative! September 2019

    But at some point we will need to agree on some description of what ME/CFS is if the term is going to have an understood meaning. What about PEM for example, should people who do not have PEM and were diagnosed with a criteria that didn't require it all be classified into the same group as...
  11. wdb

    MS research versus ME/CFS research

    A couple of depressing charts
  12. wdb

    Google bans advertising for speculative and experimental medical treatments

    Just searching YouTube for things like "CFS cure" is honestly not nearly as bad as I was expecting, makes me wonder if they already have trained the algorithm to not surface so much of the stuff like you describe.
  13. wdb

    Google bans advertising for speculative and experimental medical treatments

    I wonder if this will impact some of the treatments marketed to treat ME/CFS.. A new policy on advertising for speculative and experimental medical treatments September 6, 2019 Today, we’re announcing a new Healthcare and medicines policy to prohibit advertising for unproven or experimental...
  14. wdb

    Calling all physicists/science people

    It looks to all be based on the work of Royal Raymond Rife, there is a good wikipedia page on him, I suspect the machine they are delivering treatment with is a rife device. Royal Raymond Rife (May 16, 1888 – August 5, 1971)... He is best known for a claimed 'beam ray' invention during the...
  15. wdb

    Positive Psychology; Positive Thinking

    This is the study, I've not read it thoroughly yet but I wonder how well they controlled for things like having both parents die young of heritable conditions giving people a less optimistic outlook. Optimism is associated with exceptional longevity in 2 epidemiologic cohorts of men and women...
  16. wdb

    Psychological predictors of fatigue, work and social adjustment, and psychological distress in rheumatology outpatients: A short report. 2019 Chalder

    What even is fatigue acceptance ? Strange that they so often talk about self reported illness beliefs but never about self reported recovery beliefs, it's like Schrodinger's questionnaire that simultaneously does and does not reflect reality.
  17. wdb

    My podcast: Medical Error Interviews

    Show notes on this page
  18. wdb

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    Would you mind explaining to a non-chemist why Tetrachlorodecaoxide (Cl₄H₂O₁₁) is in effect the same as Chlorine dioxide (ClO₂) ? To me that sounds like saying carbon dioxide is in effect the same as carbon monoxide.
  19. wdb

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    Do you have the drug name, is it the same chemicals in comparable quantities ?
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