Search results

This.

Unlikely to be of benefit for those with nutrient uptake problems.

Yep. It is increasingly appears that the BPS club have successfully hijacked and corrupted the reform process in the UK. Evidence also strongly suggests that they are currently trying to pull the same trick here in Australia with our forthcoming guidelines review. They are utterly shameless and...

IIRC, Walitt is in charge of the ME/CFS program, the LC program, and the GWI program. Just in case anybody had any doubts about the prevailing views within the NIH on these conditions.

I think we are past the point were that can shift them. We are well into putting their behaviour on the public record for future accountability.

The post-truth era in medicine is upon us.

Protect the establishment at all costs.

Which is their aim. More gaslighting of patients, especially new patients, who don't know the science & history of it all and are not equipped with the knowledge to fight back.

This. It is exhausting and dispiriting in the extreme to have keep playing this shitty game over and over with almost every fresh clinical encounter, never knowing what you are going to get, knowing only that you are not in a position of power and largely have to put up with it to get the help...

I think I am in a PEM state all the time. All that varies is the degree and its impact.

Is there any area of medicine that has actually benefited from Wessely's influence?

I look forward to this novel approach from our premier medical science institutions.

4/ It claims ME/CFS is likely several different diseases with similar symptoms. We have no evidence of that. Pure speculation that has no part in clinical advice. My first thought too. I cannot come up with an answer that is both plausible and acceptable. Medicine is clearly broken on this...

Reminds me of the term convergent evolution, from biology, in which similar forms/features/functions are arrived at in separate species by independent evolutionary pathways.

A positive sign, then, not a diagnosis by exclusion? :sneaky:

Lovely and well informed piece. This could be a good angle to help the broader public understand what is going on. Get close family and friends to describe their experience of dealing with their sick loved ones and seeing what happens to us.

this study points to the potential cumulative impact of mild long COVID symptoms in younger individuals. This is very important, and is why early diagnosis and management is so critical to reducing the long term burden.

Moreover, there are concerns about patient adherence to GET protocols. Due to the nature of CFS/ME, patients may experience fluctuating levels of fatigue and post-exertional malaise, making it difficult for them to adhere to a structured exercise regimen [47,48]. This variability in adherence...

Forty years into this nightmare, and I still have not figured this one out.

Seems like an important clue about what is actually going on when they ask these kind of soft questions. Yep. I have long advocated that patients should organise strikes against substandard research methodology and clinical practice. Refuse to cooperate with, submit to, or participate in it...