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I'm pretty skeptical. I don't have any known ongoing infections. I even tested negative for EBV.

The discussion around health anxiety is not inclusive because it fails to discuss the experiences of people who have actual health problems. I have experienced two forms of anxiety around my health: Fear that I do not have a legitimate health problem. Fear that any sporadic symptoms is a...

It's definitely a country-by-country thing. In the US, billboards are common along freeways (motorways) and major roads.

The CDC recognizing PAISes as a group is a definitive sign that BPS ideology is continuing its slow, inexorable slide into irrelevance. Edit: Also, I'm very thankful for this.

If it's only effective if you believe in it, that's not science, that's religion. Not that I hate religion. But it doesn't belong in a scientific paper!

That's even better, thank you.

Do they accept donations from the US? I would like to put this in my advance directive in case I die unexpectedly.

Smells of "You're a woman, so your symptoms aren't that bad, just deal with it"

I strongly agree with you, Ravn. We need to shift the research from why fatigue happens, to why PEM happens. It's the cornerstone of this disease.

Low grade neuroinflammation. In interesting paper is Broken Connections: The Evidence for Neuroglial Failure in ME/CFS (S4ME thread) An infection, another event, or an seemingly spontaneous change causes glial cells in the brain to become hyperreactive to changes in the body (including the...

No, nobody lied. The vaccine phase 3 trials showed very good effectiveness. Real-world effectiveness was lower due to: Immunity fading over time The virus mutating In late 2020, we knew these were possible, but not whether they'd manifest themselves. If we wanted to see before releasing the...

It's surreal to hear people claiming long Covid is psychological, then reading that even a mild Covid infection shrinks your brain.

I had one once. It was terrifying and I had some degree of visual disturbance that lingered for days, and resulted in an ER visit. It never happened again and I won't be that worried if it does, since I know the cause.

This is the deleted post you are discussing: https://www.reddit.com/r/Residency/comments/16zx2or/what_diagnosis_do_you_find_hard_to_take_seriously/

The authors of this paper and the patients who helped them have done superb work. I have several points of strong praise: The entire questionnaire is based around PEM, which acknowledges the most specific and disabling symptom of ME Unlike most questionnaires, the activities given are highly...

I just bypassed the paywall.

The main message of the article is that exercise is recommended for POTS, but it's dangerous if you have PEM. They also discuss how it's not the end-all be-all of treatment, and that anecdotally, most people find medication more helpful.

I will give my own contrasting experience to keep things representative. When I get blood drawn, they don't have problems with it flowing slowly or clotting. However, a decent number of pwME have similar experiences to yours. It's hard to tell if it's normal variation or if we're on to something.

This is wrong. It's better to be addicted to drugs than in terrible pain.

They really wanna do a treatment trial! Yes!