Search results

This post got pretty long so I separated it into questions and background. Questions: 1. Do any forum members have a diagnosis of SVT (supraventricular tachycardia)? 2. Has anyone tried the Kardia mobile device/app (portable type of ekg)? Background: I don't know what kind of SVT I have...

Thank you so much for the transcript. Won't be able to read it today - marking it to read later.

Argh! :mad: Sorry to hear that :( Obviously, some doctors just don't want to listen to patients. I've had quite a few of those. That's why I stick with my current primary care physician and cardiologist. I've been seeing those same two doctors since 1994 and 1995 respectively. Great! Since...

I just wanted to add that I hope this is not seen as a duplicate thread. There is already a thread discussing the continuing education credit here: https://www.s4me.info/threads/us-healthcare-providers-receive-cme-credit-for-watching-unrest-and-new-diagnosis-and-management-video.5880/ But I...

Here's a relatively easy advocacy action for patients in the USA: Ask your health care professional to watch Unrest online and get continuing education credit. What I did was print out some flyers (found here https://www.meaction.net/wp-content/uploads/2018/10/Doctor-flyer.pdf ) and then gave...

Wow, congrats! Wishing you all the best and looking forward to seeing pics! :)

That's true for me. Or it was true, many years ago, when I tried massage a couple of times. I learned pretty quickly that massage made me feel worse. So I stopped doing it. As I recall my main symptoms were muscle aches along with the overall "flu-ish" feeling, not fatigue. But it has been a...

I don't know how @Esther12 found it but here's the advanced search link that I often use when I want to find something on twitter: https://twitter.com/search-advanced?lang=en

Does anyone have a transcript of this video? I have trouble watching video and absorbing the information. If there were subtitles then I could read while watching and that would help. But I have not found a version with captions. By the way, I wish there were captions for all videos...

All dogs are good dogs but @Webdog is amazing! :trophy@:thumbup:

I missed this article when it first came out. Like others on this thread I also thought this was a good general article for people who don't keep up with ME/cfs research. I've discussed the CPET with some folks (mostly non-patients but also a couple of ME patients) and I think this is a good...

That's a good question. There are so many tests that I have never had done but I did have a muscle biopsy pretty early in my illness (mid to late 1991, don't remember exact date). The biospy of my right thigh (punch biopsy, I think?) showed some sort of minor abnormality. But it was one of...

I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure. Full article (may require Medscape registration/login) - https://reference.medscape.com/viewarticle/900291_5

Woo hoo! :thumbup::trophy@

For @Little Bluestem ( and anyone else who can't join in on Aug. 8th ) there's a note on the website saying you can do it any day in August: "We'd like you to join us in taking part on 8th August, but feel free to do it any day in August." It's easy to miss that info. You have to scroll down...

I thought this was in interesting article so I thought I'd share it here: https://www.nybooks.com/daily/2018/07/25/the-challenge-of-chronic-lyme/ PS. I'm not looking for a debate on Lyme. Please don't ask me any questions. I don't know enough about it.

I'm in the USA and I was able to watch the video. I didn't watch the whole thing, though.

This youtube video is still photos with captions printed on them and some background music. I'm pretty sure this video is not the news story that was mentioned earlier in this thread....but since the video has the same title I can understand the confusion. I went to this link...

I don't think you are necessarily weak just because you thought a doctor's training schedule was too grueling. I would never want to do that type of schedule, either! But some folks might be energized by that type of environment and enjoy the adrenaline rush. Different careers draw different...

Oh my goodness. (trying to keep my language clean) Sheesh! When I first got ill I had trouble walking across the room. I am still unable to stand long enough to take a shower due orthostatic intolerance. If I just had a level of "fitness" that would match your average couch potato (work at a...