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I foolishly started responded @Esther12 comment on what was important was the calibre of people of the decision makers, by compiling a list of those involved, but it is quite long and possibly not very helpful as it is not immediately clear what the various roles involve: Brain, Nerves & Mind -...

I have been looking at the various Cochrane Review Groups to try to make my own mind where I feel we would best sit. There are eight main groups (see https://www.cochrane.org/about-us/our-global-community/review-group-networks ): Acute and Emergancy Care Brain, Nerves and Mind Cancer Children...

Although Cochrane put no timescale on deciding what to do about their Review of Exercise in relation to CFS in their update at the end of November indicating that the authors' rewrite had been rejected, they did more concretely state: Obviously we feel all it very important for the future of...

Is there any objective evidence that 'conversion' of hypothesised trauma into somatic symptoms ever actually occurs? These supposed conversion symptoms are presumably very different to PDST as they do not even require that you remember the presumed trigger event. Do people ever define their...

There are various useful leaflets, and I always think I will remember the sources, but then forget. In the UK the ME Association has various leaflets and will send free of charge their purple book to GPs (see...

If as the BPS crew seem to believe the illness labels impact on people's actual condition, presumably they are also by implication saying the right labels would improve our health. Should we change our labels according to the symptoms we are experiencing on any particular day in order to...

In relation to MUS and to the make up of the new NICE Committee there was quite a lot of discussion here around [the literature expressing the belief that] that people with MUS should not be medically assessed because this reinforces their 'false' illness beliefs. Is that relevant to this...

Although I would agree video conferencing is a potentially very useful tool, indeed it is in my list of things to discus with my GP when/if I get to speak to him, however I remain suspicious of anything emerging from this team. The big worry is that it would increase the stranglehold on ME/CFS...

This may be a bit of a digression. Have found a couple of sort of relevant studies in relation to Fibromyalgia, that give two very different approaches to understanding the impact of labelling. Unsurprisingly the one Wessely was involved in seems to be making a negative value judgement about...

Sorry not feeling up to reading more than the abstracts at present. However I am suspicious of any study claiming an effect of naming because there are so many variables: - at present we have no agreed objective measures of functioning or outcome - with problems of definition can we be sure that...

An interesting article. However I have no specific recollection of having had hiccups during my acute glandular fever stage leading to my ME.

Are you starting 'a book' on this? What odds do you give on a Lord Wessely or a Dame Crawley? [Added - perhaps we should be contacting our local Lord Lieutenants or writing to the Prime Minister's office with our own nominations.]

Yes, I understand you point. A disrespect for the patient is inherent in the BPS approach to ME/CFS and their development of the concept of MUS as a covert psychiatric diagnosis. However I wonder if this disrespect comes from a disdain or even moral judgement that is different to how we regard...

Presumably here the pet owners and vets demonstrating the caregiver placebo effect were relying on their own informal observation rather than attempting to measure any outcomes. Also they were only wrong arround 50% of the time compared to independent objective measures. Obviously, as @Unable...

Perhaps they were doing the research on a limited budget, so did not have money for nurse support.

My interpretation was, given the way my blood was taken changed from session to session in such a way as to increasingly assert the doctor's authority/control, that it was a choice, even if not a conscious choice, so unlikely to be part of the research protocol. What was most bizarre was that...

Well said @Brian Hughes It is so frustrating that issues being discussed forty years ago and more have still not been properly addressed.

On reflection, I had a sudden onset of symptoms, literally between 1 and 2pm on a Wednesday afternoon at a regional communication technology special interest group. Some weeks later presence of the Epstein Barr markers was established. Everyone assumed that my symptoms were acute glandular...

Presumably unless there is confirmation that the patient had a specific infectious agent, we can not be certain that all onsets associated with an episode of 'flu-like' symptoms are the result of an infection, as one of the common symptoms of ongoing ME is 'flu-like' without any identified...

Here is the Sun link, this is their Irish site, shared by Tom Kindlon on Facebook, I don't know if they also have a seperate link on their English site: https://www.thesun.ie/fabulous/3531546/me-sufferers-arent-just-lazy-expert-reveals-new-evidence-of-what-causes-chronic-fatigue-syndrome/