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If it exists, I imagine it would show a correlation between severity and bed resting. Of course, it is a well established fact that (certain) researchers are free to choose a direction of causality in whichever way is most convenient without need of further evidence.

The question is, are 'Functional Syndromes' (or whatever name is used) well enough defined for any study using them to meet the definition of "scrupulously well designed". If all it takes is "We can find no medical explanation for this symptom" then I say not.

Thanks for your efforts over the years @dave30th. Earlier in 2015 I was coming up for my biannual review of my disability pension provided through my income protection insurance. I knew the specialist I needed a report from was keen on me trying CBT and GET due to the PACE trial and I felt...

The solution is simple. Governments (i.e., we, the people) must legislate to ensure risk is spread. Unbridled capitalism is a horrible place. Just ask child coal miners from the 19th century.

Yes, that "How is your memory" question makes the whole thing seem ludicrous! How are you supposed to answer it? What does "My memory is more than usual" mean? To fit with the other questions, answering more than usual should imply more impairment but it sounds more like saying your memory is...

Silly me. I had the idea FITNET had something to do with fitness but it's just CBT isn't it.

Didn't Carolyn Wilshire show that GET biased improved the physical function questionnaire more while CBT was better for the fatigue scale?

Previous studies have shown the time and measure to ensure maximum placebo response!

I agree. Day 3 sounds like just the place for this to happen.

I have only read the abstract but haven't they just demonstrated that subjective questionnaire responses can be influenced by researcher bias?

Although it is obvious to us that the Cochrane reviews quoted are meaningless because the studies they review are meaningless, as long as they stand they form a potent debating point for audiences that won't look beyond the Cochrane name. They need to be exposed for the shite that they are. (I...

Says it better than I can. Very well done and thanks heaps to all involved for all the work that went into it.

Yes I was confused by the choices available.

The fact that he thought it ok to make that tweet and MS to like it does indicate how strongly wedded they are to the idea that it's all in our heads.

Surely this comes down to the definition of the group that the NICE guidelines are being written for. If the target group is defined by ICC (say) and the prevalence of ICC was shown to be 0.4% (I am only guestimating these numbers for the sake of the argument) while the prevalence of Oxford was...

WTF?

The difficulty is that what is effortful varies a lot between individuals. I suspect it's the things that used to take more effort when I was well that are most likely to crash my brain now. For example, writing was always an effortful task for me (although I was usually quite pleased with the...

For me, cognitive deficits are much more of an impediment than physical. I don't post much simply because the effort of deciding what word to use next is too much. As I struggle through I feel as if my brain is demanding energy but it isn't available. If I keep pushing my legs start getting...

This thread should be required reading for any researcher contemplating investigating ME. Anyone up to suggesting it to them?

This excuse only makes sense if schools only keep records for the percentage of expected hours attended and not the actual hours attended. Does anyone know if schools do not keep that data?