This. Exactly [expletive deleted] this.
Funny how these articles continue insist on missing the point; why does anyone need to be trapped in a darkened room for five years?! And yet we are supposed to say "oh, isn't that nice - she can do 20mins gardening":banghead:
Given that we always sound like conspiracy theorists anyway, doesn't the timing of these articles seem a little ...odd? Given how much Maeve's mum has been all over the news and is being taken seriously, that suddenly there is a rash of positive thinking/recovery memoirs..?
I see the gruinaid...
Are you able to share please @InitialConditions ?
This would be massively helpful to the Billboards team in replying to NIHR's response that I am involved with, when able. Thanks!
I have posted on Twitx as well, but I think it would be useful to ask why the elearning is a slideshow and doesn't make use of such amazing patient produced resources such as Dialogues for a forgotten illness, or the wealth of podcasts about lived experience of ME and LC or the extensive library...
Thanks so much @Robert 1973
"...the coroner finds the situation so serious that she is preparing a section 28 prevention of future deaths report, the delivery plan must include an audit of all health trusts to discover if they are following Nice recommendations for the care of people with...
Based on history so far, he will be the first person the NHS ask for his "expert" opinion, which is a oxymoron to start with
Well he has so far...
Until someone actually sees that every illness/syndrome he has successfully psychologised has been shown to have a biological explanation and he...
I was just making lunch and realised just how incredibly hungry I was - form long before lunch time - very loud rumbling, which i rarely have!
I am currently battling regular exhaustion, PEM and ptsd - the combination of which has made my ADHD sooo much worse and I am absolutely ravenous...
I am currently seeing a clinical psychologist at the covid clinic who has a wide range of skills and provides them as appropriate - but isn't allowed to help with ptsd as it is outside of scope
Yes, absolutely.
Two problems immediately come to mind;
We need to diagnose correctly (so many...
It also helps with emotional dysregulation in ADHD. It combines mindfulness, assertiveness and emotional regulation skills and a bunch of other useful skills I was never taught as a kid and really could have used. But then I could also have used being diagnosed as ADHD and Autistic as a kid too...
Wow..this is amazing. Thank you for sharing.
Tbh.i have no idea what is taught in our (UK) schools as I am almost 50 and don't have kids and my close friends that do have kids have pre nursery kids
This article was an absolute revelation - thank you to those who spotted it. Some CBT and ACT techniques have been really helpful, and DBT was life changing, and should be taught in schools, IMO. None of those have anything to do with ME or LC though - except for the rats nest of MH issues that...
Thank you.
We have been in conversation with our previous MP for 7 years and he new one for a good few months now as where we are is only ever a two horse race.
yes, we have been doing similar. Hopefully if enough of us are saying the same thing it will get through
Interesting point. I...
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