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What do you mean by this?

Yes, we absolutely need more research on this, in both POTS and ME/CFS. We know some of the key mechanisms likely driving orthostatic intolerance, haemodynamic alterations and compensatory tachycardia, though we need more and better quality evidence. The hard part will be understanding their...

Grammar rules out the window.

This is exactly what POTS is. Let's just focus on POTS. I don't follow this. What is the definable physiologic abnormality in POTS? Are you talking about the tachycardia criteria? If so, I agree that the syndrome should not be centred on this trait. We have had these conversations elsewhere...

You think POTS is a bogus syndrome? Why would POTS be a bogus syndrome but ME/CFS not? Or is ME/CFS a bogus syndrome too? The epidemiological evidence that POTS exists is of the same form as the epidemiological evidence that ME/CFS exists.

The abstract looks pretty reasonable to me. Good to get a review in a top journal.

Probably no peer review either judging by the dates of submission and acceptance in the above screenshot.

I agree... a whole lot of words but not much more. I was going to say that I also don't understand why this is published in Cadiovascular Diabetology, but perhaps this explains why:

She did, but also recovered in around a year. I wonder if it was more of a PVFS thing.

The PEM webinar is now up on YouTube

I wouldn't be surprised if she makes a reasonable recovery and can resume her old career. She seems to have several things in her favour from what I can tell from her videos and posts.

I would not be in favour of tying a name to any one person. It's a recipe for disaster.

What about GovFundME, a play on GoFundMe and hinting at the US '.gov' identity/nomenclature.

Voluntary attention regulates acute immune responses in humans Mizrachi, Nofar; Rottem, Menachem; Rozenkrantz, Liron Abstract Abstract Attention is a central mechanism for prioritizing and shaping sensory information. For example, directing attention away from injury reduces perceived pain...

This is quite similar to how I was when I first became severe a few years ago and my PEM/crash days are still like this. Do you have orthostatic intolerance? Being upright and exerting in the first few hours really does me in. Could you try breakfast in bed rather than getting up? I also...

I read this as third eye protrusion and thought Marmalade had ascended to a higher astral plane.

Raelan doesn't care what the condition is. It's all the same thing to her. Sometimes the diagnosis isn't even explicitly mentioned. Often the interviewees are self-diagnosed. EDIT: I've also seen several videos where the interviewees got ill during covid so they call it long covid despite...

Ah good spot. I've now registered.

Would appreciate a PDF if anyone has access. Thanks.

There are some memes — in the old sense of the word — in the ME/CFS world that never seem to die. Hydrogen water is one of those.