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I find your logic hard to follow. You might just as well claim ME/CFS is caused by migraines, since a lot of pwME get migraines, or that IBS and ME/CFS are the same condition because some pwME have IBS symptoms, or that GERD causes ME/CFS since lots of pwME have acid reflux. Overlaps in symptoms...

If you want members to read information you have posted elsewhere, it's best to post it here.. If it's long you can copy and paste it into a series of posts. I personally can't really take in information that is split into a series of short posts on Twitter or Bluesky. Turn it into an article...

Thanks for joining us, Trent. I am much reassured. I wish clinicians dealing with people with ME/CFS showed such sensitivity and eagerness to listen and learn.

I haven't seen any attempt to answer this fundamental question if the hypothesis is to be worth exploring. If there is no evidence apart from an anecdote or two of some improvement in some symptoms, then the hypothesis is a non starter. The thread title is: Upper Airway Resistance Syndrome...

She refers to 'per protocol' for what patients would have to do with the device, but doesn't say what the device is. The survey is just a quick one about whether people would participate and how much money they would need to be paid to participate. How can you know if you would participate...

But is OSA well recognised to be associated with other symptoms of ME/CFS other tahn fatigue? If not, how can your theory explain anything to do with ME/CFS.

For the GWI data, it only finds a higher prevalence of sleep apnea after they got GWI. There's no mention of it predisposing to or causing GWI. Maybe the GWI triggered the sleep apnea, or maybe the pwGWI were unable to exercise, put on weight and developed obesity related sleep apnea. Or...

They seem to operate a hierarchy of truths where their truth is the truthiest truth..., their anecdotes are the truthiest anecdotes, their feelings are the truthiest feelings...

Hi Natalie, welcome to the forum. I have read what you posted here. I find it hard to follow an argument that jumps from one tweet to another. I don't have the energy to dig through long threads on Bluesky or X or to follow up all the linked research. If I try to summarise what I think you are...

It is all remarkably childish and boastful, isn't it. I can't imagine what they are thinking. Can I have a badge for recovering from measles, mumps and chicken pox, all before the age of 7. I must be a very superior being.

Deleting seems the sensible option. What bothers me is there could be a much better app that pwME could link to any wearable they have to track steps, heart rate etc, with easy to record symptoms, severity level and FUNCAP data, and meds to track their own data as theý choose to, to help with...

A letter to Charles Shepherd at the MEA submitted on the MEA contact form. He has asked on Facebook for feedback on it. I was looking at it again today to see whether I could face trying to put together a coherent critique and decided not to bother, unless it has new materials added. As far as...

Published 2024 Long COVID Clinical Severity Types Based on Symptoms andFunctional Disability: A Longitudinal Evaluation Manoj Sivan 1,2,3,* , Adam B. Smith 4,5, Thomas Osborne 1, Madeline Goodwin 1, Román Rocha Lawrence 1,6,Sareeta Baley 7, Paul Williams 8, Cassie Lee 9, Helen Davies 10...

It sounds like a worthwhile project but I have mixed feelings about the title 'What doesn't kill you', as I assume it's meant to suggest the following 'makes you stronger'. And the wording about ordinary people triumphing over extraordinary difficulty... I don't feel like I'm triumphing, and I...

I tnink there are some genuinely disordered breathing patterns, such as hyperventilation, shallow breathing, breathing mainly with the chest not the diaphragm. I don't know how difficult it is to change this and what is the most useful way of helping people to do so. I have found some breathing...

Some people with very severe ME/CFS cognitive problems report that, for example, when trying a particular treatment, or when they have a temporary remission, their full brain function returns intact. That is not the case in dementia, because parts of the brain are physically damaged. That...

When I read that I immediately wondered whether one of the pilots might be suffering Long Covid brain fog.

For anyone relatively new to the subject, it's worth reading this thorough article explaining why the CFQ is badly flawed: S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

I googled this and was offered useful advice on watering and fertilizing my dahlias. Seriously though, why do psychologists think they have anything useful to offer in treating physical pain.