Search results

I'm so dejected, even though I expected this. Can barely think. Trying to wade through thyroid info to help myself. After 3 weeks back on T4 only, my blood test results are back to stupid. TSH barely above 0. T3 a shade into normal range. T4 just under mid range. WHY? If they only did TSH...

@Arnie Pye my foggy brain is telling me that bioidentical progesterone is good for post-menopausal woman to preserve bone density. Definitely look it up. I'm too exhausted to check it, sorry. I'm so damn tired. So sorry for your bad, horrible, time with doctors. I'm gonna order some T3 and...

@Arnie Pye wont the NHS test your hormones for you? Progesterone and testosterone at least? For example, I came off the pill 5 years ago, at age 37, when I read about how appalling it is for your health. After 6 months my periods were still lasting for 3 weeks. So I saw my GP and got a host of...

Great advice - I'll research T3 thoroughly before touching it - last thing I want is a heart attack. :nailbiting: Oh my gosh. I wish that you could take it. Our bodies are so strange - rejecting what they need the most. It is a bloody nightmare working it out. Thank heavens for helping each...

@TiredSam Whatever do you mean? :angel:

I think that presenting like you're challenging your diagnosis might be a good approach to take. Since there's no definitive test for ME, how can you be sure you don't have one of the other neurological diseases unless you are tested? Surely a top doctor such as she can see that your symptoms...

@Woolie I love this, it's great. I particularly liked when she said that one of our best days was probably a sick day for one of them! So true. @Cheshire Every damn doctor should be made to do this! I love it nearly as much as I love my first cup of tea of the day. That's serious love. @Sean...

FFS :mad: "Where the mind goes the body will follow" "She imagined herself a little better" Oh, I just can't be bothered. Unlike this woman I REALLY DO have ME/Chronic fucking Fatigue and can barely kick my duvet off, never mind fucking KICK BOX.

@Agapanthus I saw an endocrinologist a couple of years ago who was all about the TSH :banghead:. It's SO hard, IMPOSSIBLE, to screen them ahead of time! I got the NDT through a private doctor who I've lost confidence in. That's why I've gone back to thyroxine. Feeling so awful now, I'm not sure...

@Arnie Pye such a sensible thing to do - why bother with bloody annoying, uneducated doctors when you know what you're doing? Thanks so much for the testing info. It's an excellent help.

Please God by me! @Arnie Pye! Are u in the UK? Amazing that you handle all blood tests etc yourself. EDIT: I'm such a twit - of course you're in the UK! Only a couple of days ago I wrote to you about the crap NHS and stuff. See - brain malfunctioning appallingly.

Thank you so much for your support @Agapanthus :heart: It all gets me so down, and I've never felt truly well since my thyroid diagnosis 14 years ago, 4 years before I collapsed with ME. I apply DHEA transdermally for my non existent levels. But that's not for the adrenals really? Like you...

I'm so sorry for hijacking your thread, @Agapanthus! @Helen with a morning blood test, I'm slightly over range with cortisol. Which was a huge surprise! My symptoms, on top of regular ME, total exhaustion! Total! Barely brush teeth. Couldn't shower for 4 days. Normally only that bad if I go...

Thanks so much for responding right now @Arnie Pye! I'm very wary of prescription level pharmaceuticals from abroad, particularly NDT which might be sensitive to temperature variability. With it being vital to my wellbeing so fundamentally, it's scary to risk getting junk. I might do it with...

Please forgive me for jumping on your thread @Agapanthus, but I think you'll understand my desperation: Two and a half weeks ago I switched back to T4 only from Natural Dessicated Thyroid and I feel awful. Can hardly move. There's ME exhaustion and thyroid exhaustion, and this is definitely the...

I was recommended to try liposomal glutathione supplements from someone on PR a while ago. But they were so expensive I didn't bother. Would this be better for those sensitive to the powder, though?

I'm pretty sure it's glutathione we want, isn't it? Comment from brain dead and clueless, too tired to Google it, over here losing brain cells by the second.

@Agapanthus you have my every sympathy. To be doing better, then have it snatched away is too cruel. I empathise with your difficulty in getting the establishment to listen to what patient groups have found to be true about thyroid treatment. It's a frustrating nightmare. I have very little...

Love this @Sue Klaus. It's excellent. I've misplaced my anger and stubbornness. It's restful to be too exhausted to rail against the bars of my prison /refuge, but I've also lost myself. Ahhh. Perfectly expressed.

:heart_eyes::heart: