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    When you can't find the words: Using body mapping to communicate patients' experiences of Long Covid 2024 Jokela-Pansini et al

    ‘We think of the body as a map’: a new approach to deciphering long Covid | Health | The Guardian includes video of long covid patient (community nurse and local councillor) My one substantial cognitive thing today was to read this and watch the video attached to the article. The...
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    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Came across Psychodermatology when I went looking for psoriasis, eczema and MS which is in my family A narrative review of psoriasis and multiple sclerosis: links and risks - PMC 29 August 2019 Psychodermatology, is now better known as Mind and Skin. The Mind-and-Skin Connection | Psychology...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Benefits shake up faces delay after court ruling lands blow to Reeves The i online report of the outcome of yesterday's court case.
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    Request for Steering Group members to guide a study on online connections of people with ME/CFS and their offline lives

    See also this discussion at the end of last year. Thesis - Hope for recovery after prolonged and unexplained fatigue, 2024, Andersen (Norwegian) | Science for ME for interview based research. ETA: Think UK, ME/CFS Final Delivery Plan due to be published at the end of the March, because...
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    Review A systematic scoping review of how people with ME/CFS use the internet, 2023, Shortland

    As in this further piece from Norway 'giving the patients a voice' discussed here from 2024? Thesis - Hope for recovery after prolonged and unexplained fatigue, 2024, Andersen (Norwegian) | Science for ME Conversely, what perpetuates illness, especially, severe - over focussing on symptoms...
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    Request for Steering Group members to guide a study on online connections of people with ME/CFS and their offline lives

    Why now? This quote from the Review paper abstract This is the Norwegian reference for that statement (long block of text broken up for ease of reading) The Social Media Experiences of Long-term Patients:... 2016
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    What do we mean by a diagnosis like ME/CFS?

    I'd be surprised if anyone's even recorded such evidence so far. I was treated with phototherapy for psoriasis at the same Hospital as the CFS/ME Management clinic I attended decades later, so it was in my medical notes and I pointed it out to them in 2011. It wasn't relevant as far as they...
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    What do we mean by a diagnosis like ME/CFS?

    In the genes? My mum didn't develop Psoriasis until she was 55, and then only mildly. I'd had it for over 15 years by that stage. My brother had exzema as a child. Causes | Background information | Eczema - atopic | CKS | NICE
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    What do we mean by a diagnosis like ME/CFS?

    I've added a link to some of the trials. A person I worked with had Crohn's and then diagnosed also with ME/CFS.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    No I don't, I only became aware of GIRFT the other day from a thread on here. I looked through it but it seemed to me that it was more to do with physical interventions not psychological ones in terms of patient safety/harms in the context of the litigation bill it refers to. I could be wrong...
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    What do we mean by a diagnosis like ME/CFS?

    Well now, that got me thinking more about co-morbidities. I’ve had psoriasis for 50 years. I have plaque, scalp, nail, and crease psoriasis. In the acute phase I was treated with coal tar preparations, phototherapy, antihistamines, it was everywhere head to toe. Still have nail, elbows...
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    How stigma unfolds for patients with Functional Neurological Disorder 2024 McLoughlin, Carson, Stone et al

    Added to this little gem from the BMJ in September 1991 (same year as Oxford criteria jrsocmed00127-0072.pdf February 1991.) Medically unexplained physical symptoms. | The BM explains the links in the NHS page above all the way to personality disorders and thence to derivation of liberty...
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    How stigma unfolds for patients with Functional Neurological Disorder 2024 McLoughlin, Carson, Stone et al

    I suspect this will/is appearing in the ME/CFS final delivery plan is some format or other looking at the NHS website updates from around the same time last summer on Medically unexplained symptoms. https://www.nhs.uk/conditions/medically-unexplained-symptoms/ Updated 5 June 2024 Next review...
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    'Distressing' unexplained symptoms that affect one in four people, NHS warns

    :) 'thought' - also idea, concept, belief, notion What is none of those things, is the fact that for the last 14 years patients with formerly known as CFS/ME now known as ME/CFS have been banned from blood donation. The other diagnoses in those lists provided in the article aren't. I fact...
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    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    That's why I asked which version of the review was in place in 2011. NICE Guideline 2007 right up to what should have been a publication date of the revised Guideline publication date of 18 October 2021. NHS told to act to stop ME deaths. Channel 4 News. Cochrane is procured, in part, through...
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    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Bearing in mind the fact that Cochrane re-dated the review within the 56 day response time to the Coroner's Regulation 28 Prevention of Future Deaths report dated 7 October 2024, is this the reason: Severe Chronic Fatigue Syndrome (CFS/ME): Recovery is Possible - Lucy Burley, Diane L Cox...
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    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    The Intertwined History of Malingering and Brain Injury: An Argument for Structural Competency in Traumatic Brain Injury | Journal of Law, Medicine & Ethics | Cambridge Core 19 October 2021
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    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Stephen Morris (0000-0002-5828-3563) - ORCID [accessed 9 Jan 2025] Deciding to catch them younger?: Malingering and illness deception conference, Woodstock 2001
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