Search results

My aspiration: Hope no one falls for this BS.

I think the term CFS, which came from the medical profession, was also originally intended to be used as a placeholder until more was known about this emerging condition. We, unfortunately, are still waiting for that to happen. In the meantime much negative, harmful fallout has occurred from...

It seems to me the same can be said, perhaps even more so, about the term myalgic encephalomyelitis.

And the ignorance, antipathy, and mistreatment ME/CFS patients have been facing for decades.

I don't have her exact words, but I have heard Dr. Klimas, an immunology researcher and clinician, say on more than one occasion that she was shocked to see the immunological abnormalities present in CFS patients that sought her out for help.

Jonathan, I don't know if this will help, but I found that when I am looking at the tweets (accessing them by clicking on them from the S4ME page), after a short amount of time, the "Log in" "Sign up" screen appears. I click on "Log in," and then the "enter your password screen" appears. I...

Personally, I prefer the word malaise over the terms fatigue or tiredness as I think it more accurately describes what I experience as a PwME/CFS. When I hear malaise, I do not think of the classic Victorian lady fainting away, but rather what one experiences when coming down with a bad case of...

These people, as a result of their "work" on ME/CFS, have created a monster. And the monster is them.

This vertigo/spinning nausea is truly awful, and I am sorry you are suffering from it right now, @rvallee. I, too, have experienced it many times. At one point I consulted an ENT doctor who after testing said it was quite severe. He said he would have been sending me for an MRI had I not...

So clearly stated. No messing about. Right on point. Your efforts on behalf of patients everywhere are sincerely appreciated. Thank you, @Jonathan Edwards. :thumbup:

An attempt by the BPSers to remain relevant and keep their fingers in the pie.

I think this PhD project is a horrid insult to any woman with endometriosis and to women in general. The stupidity and insensitivity of its concepts astound me. How can this possibly have gotten approval? To what greater depths can psychology sink? It makes me fear for the future of medicine...

Yes, yes, yes. And the authors use of them only highlights the naivety and incompetency of the authors and their inability to grasp (or perhaps their blinded denial of) what this disease actually is and how patients are affected by it. This is the starting point of the whole terrible tragedy...

Thanks for the input. Finished signing the petition. :thumbsup:

Question -- Started to sign the petition, but stopped at the field "By" in the box under the surname. I don't know what this is. @Noir, can you please tell me what I need to fill in here? Thanks. And good luck with all your efforts.

Excellent! Excellent! Excellent! Thank you! :heart:

Again, it's not the patients' beliefs about their illness that is the problem. It is the beliefs about this disease on the part of certain doctors/researchers/therapists that is the fundamental problem. That needs to change. But how does one change the biased views of those who refuse to see...

Just checked and saw that as of this moment 7189 people added their names to MEAction's response to the CDC opposing their flawed evidence review. August 15 was the deadline to do so. This may not be the final tally. Thanks to all those who helped with this advocacy effort.

I've just checked the petition and saw that at this moment it has 6,779 who have signed it. I believe MEAction were aiming for 7,000 signatures. The number continues to slowly increase. I do hope as many as possible do sign on.

My experience of this disease very much duplicates what you have outlined above, @DokaGirl. I never cease being astounded by the way many researchers, clinicians, journalists, etc. present this disease in their writings. It's like we are living on two completely different planets. It shows a...