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Yes, also this. Change in palor, and darker below the eyes.

That's true, but this name is actually quite sadistic.

With regards to (b) (i) tinnitus - huge problem for me, occasionally noted, but possibly 'underplayed', in the literature (ii) visual processing issues - visual noise, afterimages, issues with patterns and contrast. The pressure of my glasses also gives me problems when I'm crashing. (iii)...

I missed this thread. I have just seen this study come up elsewhere. Does anyone thing this name is actually quite offensive and not really suitable?

If I recall correctly, Jay Goldstein basically just threw medication at patients, and devised network trees or algorithms to determine what might work next, or what to add/subtract. He had is own theory of what ME/CFS was and then used medications like you would ingredients in a complex recipe...

Headaches are one symptom I have not really suffered with since onset. I probably have less headaches than the average person. I do have quite bad vision issues, but not of the type associated with headache/migraine.

Pharma should be interested. This could be a goldmine.

Moved post I don't think we have that knowledge yet. It requires tonnes of data that isn't available from the trials. Edit: Add article: https://www.the-scientist.com/news-opinion/trials-unlikely-to-show-if-covid-19-vaccine-prevents-severe-cases-68109

Nope. Only before ME. Both very pleasant experiences. Would definitely try LSD, mushrooms, and ketamine to see what affect they had on my symptoms. Ridiculous that these chemicals/molecules are banned. The war on drugs has been an absolute disaster for our understanding and utilisation of...

I'm a bit worried that the numbers have plateaued at or around 20,000 since the initial wave of sign-ups. My understanding is there needs to be significantly more than 20,000 registered due to numbers reducing during screening. Is there a plan to try and ramp this number up?

Yes, that seems likely to be part of the story. As well as in the gut, bacteria in the mouth are very important.

This is a pretty standard example of how my tongue often looks, though the 'white food debris' issue is less pronounced these days. Still get lots of bare patches, and the sides of my tongue are scalloped. I don't recall having these issues before becoming ill.

https://www.huffingtonpost.co.uk/entry/covid-tongue-explained_uk_60016507c5b62c0057bc0be2?ncid=fcbklnkukhpmg00000001&fbclid=IwAR3KZkyFOqPM2vuwSrM_MVSvLoAM-U4nInQ5UtnlL3LzXEwPJYhWmlzOa4g&guccounter=1&guce_referrer=aHR0cHM6Ly9sLmZhY2Vib29rLmNvbS8&guce_referrer_sig=AQAAAGa517_TqWUBcV_ZrgqWanMDO6DeMe...

Exactly. We don't know what fibromyalgia is, and therefore Dr. Myhill should not be making assertive, confident statements about what fibromyalgia is. Or for that matter ME and CFS, which she routinely does.

Fibromyalgia is an allergy to gut microbes, apparently. Completely bonkers as usual!

"Up to 20% of people worldwide develop gastrointestinal symptoms following a meal" Not exactly sure what this means. Does it mean 20% have regular issues, or that 80% of people have never had gastrointestinal symptoms following a meal (which surely cannot be the case)?

The CMRC PAG has forwarded this thread to the ME/CFS Priority Setting Partnership who are currently formulating the main survey/questionnaire that will be distributed to patients (and their carers, etc). (https://www.psp-me.co.uk/)

Newton and co did some work on this. https://meassociation.org.uk/2013/04/biological-breakthrough-offers-fresh-hope-for-me-sufferers-the-times-23-april-2013/ The link to the press release is dead. And no link to study.

George is a great journalist with huge reach. He is mostly involved with Double Down News (also very good) these days, so an article may appear there.

I just came to say I've had actual cramp only about three times in my whole life. No idea why it's never been an issue for me.