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That's exactly my point. All of these 'behaviours' are also often the result of being ill with ME/CFS.

I probably don't have to spell this out, but there's a correlation / causation issue here that makes these findings pretty much redundant.

Someone needs to take the Swiss Re logo and turn it into a Sharpe & Co Reassurance meme.

There seems to be a lot of comments on the Guardian article about hypochondria and role awareness in the media might play in that. For me, this is something that likely exists on a small scale, but it's a misreading of the article. Rather, the article considers forces at the societal level, and...

This is a beautiful piece about becoming chronically ill, learning to cope under the extreme burden, and accepting a new reality. It was written over the course of a year by Matt Lazell-Fairman, who has ME, and whom I know through his wife Katie. Matt is also the son of Mary Dimmock, who now...

So they can say 'it's the most common illness you've never heard of'.

Does anyone have access to the paper? Please DM if so!

If you ask Suzanne and her peers about all the so-called psychosomatic illnesses through history that have eventually been shown to be disease rather than 'just illness', what is their response?

Did your ME/CFS involve a viral trigger?

See my first post.

To appease my curiosity, please answer the above poll. Please give this poll a miss if you've not noticed issues with lymph nodes in your neck. Thanks.

Yep, four months seemed totally optimistic given the volume and detail of the comments. But why wait until 90% through those four months to decide a 100% extension (another four months) is needed!

It's actually Scientific Reports (a Nature Publishing Group journal), which is a journal that often publishes work rejected by the top-tier journals, such as Nature. But, it's still a high-profile journal.

Yeah, I think the responses are under wraps until they are published with the guideline. I think we might have seen one or two, though I can't remember who from.

What feedback from BPSers have you seen? And where?

This is ridiculous! They knew the number of comments received back in early January. We are just over a week until the embargoed report is released and they've just realised how many comments they have? I don't believe it.

Yep, it's definitely now being used to describe an acute reaction to exercise (the type you'd expect with cardiovascular impairment).

Merged thread https://mylongcoviddiaries.medium.com/i-finally-have-a-diagnosis-for-long-covid-and-its-shocking-82ddcb214656 This is a personal blog about one patient finding the probable cause of her long-Covid symptoms (blood clots in lungs and fluid around heart). It's interesting because the...

Thanks for your comments. It's not a hypnic jerk - I do experience these and it's very different. These surges are totally within my body, and feel like a release of a hormone or chemical(?) @NelliePledge 's experience is the most similar to what I'm describing.

Another very hard to describe phenomenon. I get this when I'm crashing. Perhaps half-a-dozen times a year. It only happens in bed when I'm led waiting to fall asleep. I get this bizzare second-long surge that I can feel in my head (possibly traveling up to head from torso). I'm sure it's not an...