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    Member comments wanted: Second section (Who the guideline is for) of the NICE ME/CFS guidelines draft scope

    their equality impact statement doesn't seem to go into much detail .about the people with m e who cannot travel or even leave their homes .
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    We need new kinds of antidepressants, in addition to pills

    its strange a well educated person had to do all that research and come up with a common sense answer that ordinary people have known for years. if you have a terrible life your not going to feel happy . I personally feel modern society emphasises the wrong things success means gaining wealth...
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    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    the attendees list just shouts I a p t the pyschs new go to for control of the medical treatment /non treatment of difficult to diagnose illnesses this is very bad news .
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    Waking up in the night and hearing a brain-generated sound

    a possibility may be fluid in the eustachian tubes .
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    PACE style CBT for CFS/ME - should it be scrapped?

    I would not want to be treated by anyone who allows themselves to be brainwashed into believing that millions of people can wake up one day and decide they would rather be suffering from a complex illness to adopt the sick role .instead of getting on with their lives complete with all the ups...
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    Blog: Neuroskeptic: Psychology, Neuroscience: Lacking in Individuality?

    stating the obvious their methods of gathering and analysing data have always been flawed . It makes me wonder why it takes four authors for this paper is it because of the equally flawed system that demands that academics publish papers regardless of the quality to keep income streams . damn I...
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    Video Recorded PIP Assessments...

    if it became compulsory I would wear a balaclava .
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    NICE looking for lay members to join the ME/ CFS guideline committee, 2018

    the meeting venue defines who is in charge who has authority it is an ancient way of cowing those with less or no power. authority always does things that best suits themselves .
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    Video Recorded PIP Assessments...

    I could imagine a bunch of wellbeing practitioners from the iapt using these videos to wrongly accuse people of faking their symptoms to gain benefits . the process is invasive enough the added stress of having what little privacy were allowed taken away and perhaps used in appeal courts against...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    is that s w in the lifeboat.
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    Media articles on Westminster debate June 2018

    still being very polite about the abysmal pace trial why are journalists so reluctant to show this pseudo science is pure fraud with malicious intent.
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    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    surely just signs that someone has realised the waste of taxpayers money involved in repeating the same farce year on year against people who have lifelong disabilities. there has been many cases where children born with serious conditions have been put through this process how stupid are the...
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    The New York Times: A New Approach to Treating Hypochondria

    seems like the writer was mirroring or more than likely making up the experience just to make a persuasive intro . what happened to the belief that many sick people with niggling symptoms avoided going to any doctor until their symptoms gave them no choice this was mentioned by public health...
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    Video: The PACE trial: a short explanation, Graham McPhee

    great video simple and to the point .unfortunately I scored 0 points for both but then I am a very stubborn person as most of us need to be to survive with this illness .
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    Michael Sharpe skewered by @JohntheJack on Twitter

    narcissistic personalities never have empathy the world revolves around them and their needs alone.
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    The Canary: The DWP is now co-working with the NHS. We should all be very worried. (Talks about IAPT and mentions PACE)

    but there will be in the future patients who miss interviews and appointments will be sanctioned the slippery slope that will eventually lead to the further dismantling of our already failing safety net . when will people decide enough is enough why should we continue to pay taxes to any...
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    Nuclear (Thallium) Stress Test, Anyone?

    doctors cannot pressure you into any treatment unless you let them . as a patient they are paid for advice whether or not you accept their advice is your choice do not allow an overbearing doctor to bully you into any treatment you know will cause you harm . hopefully you can have a friend who...
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    BABCP Annual Conference and Workshops

    considering they made a career out of lying maybe the process of change means they need to come up with better lies to keep getting their hands on taxpayers money . a meeting to find more ambiguous language to befuddle the governments purse keepers.
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    Lobotomies were once used to treat this gut disease, part of a shameful medical history

    Victorian thinking and probably older .you know the kind of thing the poor are workshy/profligate .while of course those who inherited wealth/privilege got everything through share hard work and merit .we are still in an I am alright society so everyone else is to blame for any hardship they face.
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