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Listened to first part, and he talks of the stigma of being a psychiatrist when he was first qualified and how neurologists were saying to him 'why psychiatry? you are too good to be a psychiatrist'. As @Cinders66 said, he never misses an opportunity to blow own trumpet.

Has anyone a link to the Times eletters to send to MPs? Good to keep them up to speed before the new session.

I am severely affected in that can't sit up in wheelchair so mainly in bed except trips to loo, but I certainly get PEM. My ME fluctuates to point where head can be reasonably clear if have paced really well but then so easily crash for trivial things - sometimes get symptoms at the time but...

Should ME with PEM and cfs ie without pem be separated into two?

Trouble is they dont see the severely affected who can't visit so showing them a (short) video of someone severely affected if you are able to visit could really help.

Anyone know names of MPs who attended but didnt speak?

Think these are just the ones who actually spoke.

Long interview w two ME sufferers starts about 25 mins in Gloucester event Eastgate St, Sat 12 May, 12-3pm

you can download and print ME awareness leaflet for general public (larger print, bold and boxes) and the excellent comic strip showing effects of PEM from www.mechat.co.uk/db/tips.htm I give them to all callers and ask everyone to put in libraries, church, work noticeboards, waiting rooms -...

but it didn't stay as a link on here!

I managed to find one elsewhere!

There always used to be a link to a youtube song I could copy and include in an email to group that needs plain text but this showed the pic itself - I cant get a link on the ipad and so came here to PC but still cant. Not sure if just me or has something changed as I would like to email it on...

Wow, it is beautifully done, as well very moving and powerful and will appeal to all generations. What a wonderful achievement!

Assume you mean that if Justice4ME wins then we can discuss variations of it afterwards. Sorry I hadnt reached the post with the poll when I posted it as a lot to catch up, but posted it as would forget if I left it till I had rested and caught up!

#Justice4pwME as the tag Justice4ME on its own can look like someone campaigning for themselves. even #Justice 4MEcfs wd be clearer and many pwme are diagnosed with 'cfs'

Wonder why comments disabled. I looked for it on their website under health and couldnt find it though older articles were there.

not sure if this shd be new thread but Sonia Chaudhury was on radio Bristol with John Darvall at about 11.09 this morning. Sorry can't find a link to listen again atm. Talked about her son getting ME and mentioning need for recognition and biomed research. Wd be good if they are turning around.

Better to write as you did well, than let things go unchallenged

They can hopefully learn - everyone will notice if they refuse to engage.

There are a number of petitions (4, I think) re ME going round atm and it is hard to get people to keep signing different ones and confusing too as they can think they have already signed. NB the Change.org ones are worldwide. When MEA petition was going round think it was the only one.