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  1. Binkie4

    David Tuller's new crowdfunding campaign (April 1, 2018)

    You are a good man @dave30th. Feel privileged to have you work for/with us.
  2. Binkie4

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Thank you @dave30th. Loving your work!
  3. Binkie4

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    Soooooo.....glad @Graham. I liked maths at school and maths teachers. No doubt given more of a chance, I would learn to understand your humour. I quite like weirdness. Not that you have ever seemed weird to me.
  4. Binkie4

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    Am sorry if I have caused confusion. I meant to support MeMarge as the second representative of S4ME. Terminology supposed to be slightly amusing. Obviously it missed its aim. Just to be clear- I join with @Graham and@arewenearlythereyet in supporting MeMarge as S4ME representative.
  5. Binkie4

    Why I want to lie down in public - BBC

    Before I got to the wheelchair stage, I used to carry a light stool hooked over my shoulder, and when I had to stop and stand which was harder than walking, I used to sit on it. In New York, I even sat at the kerbside as I waited for traffic lights to change. I never knew I was breaking the...
  6. Binkie4

    Why I want to lie down in public - BBC

    Was there 2 years ago but didn't have the energy to get off the cruise ship and actually look at it properly. The guide book lying on the bed had to suffice.
  7. Binkie4

    Tai Chi Equals or Betters Aerobic Exercise in Fibromyalgia

    I did a tai chi course weekly for about 9 years before I had ME. I really loved it. We followed a Master Lam's form and learned a miniform, short form and then the movements of the first 3 parts of a long form. During the summer we practiced in Richmond Park amongst the trees. Each class...
  8. Binkie4

    Tai Chi Equals or Betters Aerobic Exercise in Fibromyalgia

    Answer to your first question- yes. Definitely. EDIT: based on 10 years of weekly tai chi classes. Stopped about 2 years into ME. Unable to continue.
  9. Binkie4

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Great expression " the discussion is part of the journey". I thought that is what this forum is about. Thanks @duncan .
  10. Binkie4

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    @Trish "It does seem a pity that people are rehashing old worries which have beeneffectively shown to be incorrect" (Apologies for not being in yellow) Please do you have a link?
  11. Binkie4

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    @B_V Please don't shoot the messenger. I'm only reminding you of what is out there. I am not writing about 1986 but 2015. "Negative crowd?"( BV) I am alone in bringing this to your notice as a response to the question you posed.
  12. Binkie4

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    @B_V I am not suggesting that someone who felt strongly enough to criticise the study online would then express an interest in volunteering, then decide not to participate. I do believe that someone who expressed an interest might then investigate further and perhaps not like what they see...
  13. Binkie4

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    @B_V Firstly, Thanks again for the detail you have produced re this study, tests etc. It gives more understanding of how this type of research is conducted, what tests are needed etc and the global nature of the whole process. In 1986, I had a spinal tap about 4 months into the viral infection...
  14. Binkie4

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    @B_V Thank you for posting the list of the scientists who are involved. I seem to remember some controversy relating to Dr Walitt's view of ME as a non biological illness. He is listed as lead clinical investigator. A quick look at ME pedia refers to a fairly recent article, 2015, with Dr...
  15. Binkie4

    Low oxygen SPO2 anyone?

    Has your O2 level changed upwards? I have bought another sats meter; now have 3. Two are in line, the other reads high so I will junk it. My reading is around 92, which is what the hospital told me when I was admitted for a day a few weeks ago. Saw my GP this week and he prescribed an inhaler...
  16. Binkie4

    Action for ME has joined S4ME

    Yes. You are right. But surely there has to be a point where science editors realise that they are just peddling old news. There must, mustn't there? It's like the flat earth society retaining its hold. Do we know any more about SMC being asked to leave CMRC? @Jonathan Edwards
  17. Binkie4

    Action for ME has joined S4ME

    Is anymore known about this? Also science editors whose information source was the SMC may be short of a contact. Do we know anyone reputable who could fill the gap? Chris Ponting?
  18. Binkie4

    PIP Tribunal

    So sorry @Wonko. I'm sorry for the decision that was made and for the effects on you of having to go through that horrible process.
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