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Post exertional crash??

Also member of MEAssociation. Bottom of page . Thanks @NelliePledge

@Andy If you are contacting this law firm. Could you advise them that there is an error of fact in their statement. Nice has not yet removed GET from the guidelines. Too crashed to send the sentence. EDIT: under heading " what does this mean for the future?"

I applied to the biobank but was too old. I wonder why they exclude "us ancients". I suppose it eliminates another variable. Dementia will be more frequent on the brain scans. We might be useful as a comparison group at some point but obviously not yet. Odd that you only have to " suspect"...

What about if you are over 60? The biobank has an upper age limit too; can't remember if it's 60 or 65.

Very glad you will be staying around @dave30th. October 2015 was the beginning of my real education about the politics around ME. And still it continues.......

Just checked AfME fb page and post I placed on Sat with link to vote is prominently displayed........ Would be great if it had some likes. Currently none.

Errrm........All I have done was post the GET petition on their fb page. What am I missing? What might they have joined? Along with @Gary Burgess? @Barry. Am very perplexed.

@Sly Saint Re: nothing from Action for ME I posted the GET petition on their fb page this afternoon. How long it remains- who knows?

I noted in the debate that Nicky Morgan asked the Minister a question about having a full debate to which she seemed to respond very positively. Then did some Wikiing and found that the Minister ( Caroline Dineage) had been Parl Private Secretary to Nicky Morgan when the latter was in the...

I am hoping that a group of MPs will form and work to support Carol Monaghan's request for a debate in the full House. I have asked my MP (also Libdem) to do this. He has signed the petition. The more supportive MPs the better. Several MPs tweeted support on the day of the debate including...

Numbers are a bit stagnant. Have just posted it to a local group. Can we do any more? Would hate Nice to think they can get away with leaving it till 2020, or even leaving it on an ongoing basis. That decision hasn't been made. How much publicity is this getting? My impression is that I see Dr...

Pleased to hear she will fight GET and CBT remaining in the guidelines. Has she signed the petition? It's an action that can be taken now. EDIT: have written to thank my MP for support including signing petition and asking him to work with Carol and other MPs to obtain a full Commons debate.

My MP has written today that he has signed the petition.

Am very glad @Liv aka Mrs Sowester that you have had such a supportive response from your choir and friends. We love Cornwall but the journey there is so long. If my heart op works and my antivirals have really kicked in, well....let's see.

A 37 year old woman with young children, but I ........you beat me to it @Trish.

https://en.m.wikipedia.org/wiki/The_Archers Doesn't sound like Archer but they both seem very popular with big fan base!

Just read article by Nicola Harley with above title in Sunday Times today, 25th Feb 2018. Gives a short outline of the condition, comment from the Sepsis Trust, and interviews with listeners who had to pull off the road in their cars because they were so distressed while listening. It's a...

Same here. I think that's what has been putting me off. But it might be becoming a necessity in this line of work!

Great idea. Sorry, don't tweet but am considering it after last few days. I want to know the MPs who have tweeted support to send their names on to my MP in the hope that a group will form to push things on.