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That's interesting @Mij. I have never heard or read that taking heparin could/ would reactivate the virus. It interests me because I took heparin for 6 weeks in March/April 2007 after hip surgery and was diagnosed with ME early in 2008. ( I had severe EBV in 1986 but mostly recovered). Basically...

There are a number of clotting disorders which would not appear in normal blood tests. A thrombophilia screen would be necessary. One clotting disorder, but there are others, is factor v Leiden which I have, and which affects about 5% of the Caucasian population. I had not read of a link with...

https://livingwithchronicfatiguesyndrome.wordpress.com/2016/08/23/heparin-for-me/

Thanks @Luther. The self guided ones at the end have 'tings' so are to be avoided for my purposes but the others will increase my choice. Thank you. Perhaps a sitting meditation tonight. I'll need to check out the accents.

Having gone through this process, I agree that observing my thoughts without reacting to them was useful to learn. I can't often do it but it's an aim. What still annoys me though is that the mp3s have tings in the middle which go off just as I'm falling into beautiful sleep. I know the point...

I feel the same as @Keela Too having had an informal test by a cardiologist walking me round a hospital including one flight of stairs. My hr reached 140 and I was significantly worse for a year transferring to wheelchair use outside the house. Really totally bedbound for long spells. Last week...

I have just bought this for my daughter and grandchildren. We don't see them a lot because they live 100 miles from us. Since I deteriorated at the end of 2016, we have been unable to visit them. It's a nightmare journey around the M25, 26 and 20, and having to sit up combined with the...

Just to say I was admitted to hospital again last week just for a day for another condition. Obs were taken routinely ( I make sure not to watch because I have a white coat hypertension and it makes it worse) and towards the end of the day, I was asked if I usually had trouble with O2. It was...

https://www.facebook.com/OpenMedicineFoundation/ Open Med Foundation fb page is collecting lots of comments

So grateful. Thank you Pineapple Fund.

@Sly Saint That may have been the one I read a couple of years ago. Now I'm on a largish red book "Ramsey's Disease Myalgic Encephalomyelitis and the Unfortunate Creation of CFS by Leslie Simpson Ph.D and Nancy Blake

http://me-pedia.org/wiki/Kunihisa_Miwa Japanese researcher and clinician measures difference in responses of pwme to OI on " good days" and "bad days". Unable to complete reading. Severe PEM but looks very useful.

A great addition to S4ME. Thanks @Andy for your sterling efforts and Dr Montana for talking with us. What a lovely man. Passionate about science, empathic about what this disease does to patients and very clear about the response needed from Government.

@Hip Your post is extremely interesting. A month ago I bought Dr Simpson's book " Ramsey's disease- ME and the unfortunate creation of ME/CFS" .His work was on red blood cell shape and @MsUnderstood was a subject in his research in the 90s I think. I had become interested in the haemorhological...

@MsUnderstood I think most of us can tolerate disappointment or lack of progress when treated with kindness and compassion. And I'm glad he treated ME as nothing but a physiological illness.

Yes. I've been wondering about this @Mattie. Even bought a second pulsox to check the first. They do differ so obviously something is not accurate, or both are inaccurate. My levels are fairly similar to yours but husband is reliably 98-99 GP not interested, although he did catch me at a good...

So sorry you are facing all this @Liv aka Mrs Sowester. I am glad you have your husband and Pickle. What a devastatingly cruel system.

@MsUnderstood I see that you have posted, and many others, but have not yet read the posts. I think your post and others need reading carefully which I will do after a stress test tomorrow. I had to stop taking betablockers for the test so HR is high and I am trying to ensure I can complete...

Unrest seems to be flying off the shelves. We ordered a copy on Sunday to send to a family member but it hadn't been despatched by 11 this morning. Mr B emailed and they said they had only just finished despatching their weekend orders. They were "overwhelmed by the response it's received"...

@Jonathan Edwards Thanks again for your reply. The way you have expressed it seems logical to me. But if I take myself as a case study, tomorrow I have to return for a stress echo because an echo under anaesthesia in Dec showed improvement over an echo taken 5 months before. I have been and...