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This (mostly paywalled) New Scientist article says: I've read the whole article and it's interesting. I'm very sorry but I'm too tired to summarise it properly! But basically, scientists have used drugs on mice that give them the health benefits of exercise. There are concerns about impacts on...

When is ME Awareness Day, @Andy? Does this push deserve its own thread and a place on the banner?

@Trish, Thanks for those notes, very helpful! Quick question: is that 'age over 16' or should it be '16 and over'?

The MEA have always said 'one size doesn't fit all' in relation to GET, as though the issue was with not individualising the treatment. I really wish they'd drop that attitude. As you say, there's zero evidence that that's the issue, and plenty that it isn't.

It has surprised me, in the context of PACE, that in the UK at least, 'research misconduct' doesn't seem to be a 'thing' - at least, not in the sense of a crime or misdemeanour that you can be found guilty of by some sort of official panel. I wish it was.

That looks like poor advice, to be honest - specifically the bit parroting CG53. It's too weak a warning to be much use.

A friend of mine just sent me a link to the article knowing I'd be interested, and said that a friend of hers diagnosed with ME/CFS post-Covid has been prescribed GET. How can we stop this unfolding disaster for post-Covid patients?

It seems like a major piece of news. I don't recall Sharpe being called out before in the mainstream media for his behaviour like this.

Do many seriously deteroriate?

That's a terrible title. I hope this idea that recovery isn't the same as restoration isn't going to gain traction. This is the rubbish that the PACE authors tried to pull, that allowed them to claim that patients had recovered when they hadn't.

But that is my question! Do the vaccines protect against getting Long Covid. I don't think so. We don't have one for ME/CFS and yet we have a symptom-based diagnosis.

Thanks - but I'm specifically interested on whether the vaccine is preventing cases of Long Covid from developing in the first place, as opposed to affecting existing cases.

Is there any data on the extent to which the vaccines prevent or reduce the severity of new cases of Long Covid? (That is, I'm not asking about their effects on existing Long Covid).

Would there be any mileage in S4ME and our charities writing to researchers in this area to try to avoid the many ME-blind stupidities coming down the pike? @Andy - anything like this under way?

I haven't been following this thread but has this been posted? (Please anyone feel free to post it somewhere better - I feel it needs a response.) https://www.theguardian.com/society/2021/mar/11/long-covid-and-graded-exercise-therapy @Jonathan Edwards

So they're trying to rehab Long Covid people by making them exercise for an hour? This is horrific. o_O

There's a set of 'Coronavirus recovery breathing exercises' here from John Hopkins about restoring diaphragmatic breathing. I find I'm not able to do diaphragmatic breathing when standing.

In another thread, @zzz posted this interesting article from The Atlantic: Unlocking the Mysteries of Long COVID As zzz said: And @Helene said: I was also interested by the stuff on breathing. Here it is (broken up for ease of reading): I don't know whether anyone has looked into...

I've wondered whether there would be any benefit from a 'passive exercise' machine that PwME (and others who can't move much under their own power) get their limbs moved. I know that biologically it wouldn't involve the same processes, but don't know enough biology to know whether it would help...

Two or three years ago I seem to remember a lot of news stories about how sitting (or presumably lying) still for ages at a stretch was an independent risk factor for a shedload of diseases, regardless of whether you exercised even strenuously at some point in the day. The advice was (I think)...