Search results

Because it was in an e-mail format (sent 2 days ago), I will try to screenshot & share:

You + ME surveyed 208 ME patients regarding the vaccine. 15% said they are "somewhat worse" or "significantly worse". Nova Southeastern also expressed that Dr. Klimas is aware something has gone amiss in a subset of patients, and would be "making a statement soon". Not sure what that entails...

I may be late to the game with this convo - but don't you think at least with Dr. Patterson's background, he deserves some benefit of the doubt before we label him snake-oil, no? Maybe it's my blinders on, but I can't imagine the former Medical Director of Diagnostic Virology at Stanford...

I thought I'd post the tool from Solve in case it hadn't been posted, that takes less than 60 seconds to complete for any US citizens, that will go directly to your Representatives asking to support and sign...

Sharing for visibility with vaccines. ME/CFS and the Coronavirus Vaccine: Is There a Better Way? https://www.healthrising.org/blog/2...-vaccine-chronic-fatigue-syndrome-better-way/ "Most people with ME/CFS appear to get through the vaccination process fine and a surprising number of people...

https://www.globenewswire.com/news-release/2021/06/21/2250254/19782/en/CytoDyn-Inc-Announces-Positive-Preliminary-Results-of-Unblinded-Data-from-Long-Haulers-Trial-Showing-Greater-Improvement-in-Leronlimab-Group-over-Placebo-in-18-of-24-Symptoms.html "CytoDyn Inc. Announces Positive Preliminary...

Just curious, what happened in this reference to Dr. Peterson?

I appreciate your input @Jonathan Edwards. I really do. My doctors believe MCAS is part of my ME/CFS picture, but I respect everyone's opinion and viewpoint. I know this field is anything but simple to dissect. I don't intend to de-rail this thread, and I know you've posted a document...

This thread has been split from Concerns about craniocervical instability surgery in ME/CFS ....I know you have a lot of pull on here @Jonathan Edwards, but I didn't know you didn't believe in MCAS being a real diagnosis. As I live in the States, I have to say that there seem to be a lot of...

..did anyone pay to register/watch then? Just curious.

Just sharing this article since Natural Killer Cells have long been associated with ME/CFS (and I live in Minnesota, USA hence how I came across it). From the StarTribune: https://www.startribune.com/univers...42/?ref=nl&om_rid=3520749001&om_mid=979813833 " "University of Minnesota turns...

(my fault, totally just saw this is a duplicate post) Just sharing from a post I saw on Phoenix Rising: Stanford (California, USA) is hosting a "fire side chat" with Dr. Fauci on Monday. There is an opportunity to submit questions on the link below. I just submitted a question on Covid-19...

My ME trigger in April 2017 was sinusitis / pressure behind the eyes / forehead congestion. I never had a flu-like feeling, temperature, cough, etc.

@Jonathan Edwards I'm sure you've probably answered it elsewhere so apologies if so (and I know it can't be answered definitively obviously) but what do you think caused, say, the Incline Village outbreak?

I wasn't able to attend this webinar today; anyone happen to watch / have a recap of some valuable points?

Remind me, who is Schutzer?

NIH Director Francis Collins YouTube Live Q&A 3/14 @ 7PM ET Just wanted to share that NIH Director Francis Collins will be taking any health / medical / medical research questions on a YouTube Live Q&A at 7:00 pm ET tonight (3/14), in hopes to help promote @AllofUsResearch and his vision for...

Wasn't able to view it today - if this is available after, if anyone would be kind enough to share the link I'd love to view it still. Likewise if anyone has any takeaways I'd love to hear them.

As posted in the Solve CFS/ME Initiative triple matching thread: For those that use Facebook, I definitely encourage utilizing the Fundraiser platform on there if you're interested in raising money for OMF or Solve ME/CFS Initiative during this period of triple matching. Not to try and pump...

For those that use Facebook, I definitely encourage utilizing the Fundraiser platform on there if you're interested in raising money for OMF or Solve ME/CFS Initiative during this period of triple matching. Not to try and pump my own tires by any means but just wanting to share that it's a...