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nice use of subjective questions, without objective measurements, and emotional attribution, to vanish a problem.

https://www.theatlantic.com/science/archive/2017/11/how-the-zombie-fungus-takes-over-ants-bodies-to-control-their-minds/545864/ (totally unrelated to ME/cfs, absolutely no parallels with the physical immobility & brain dysfunction of ME, nothing to see here ...)

the clinic is still connecting their (competently diagnosed) patients with researchers - i'm hoping that will continue in the short term. maybe the proposed biobank might have a dual role - to hold biological specimens - and to hold contact details for 'competently diagnosed' patients who are...

coincidentally, for me, faecal testing, some specific antibiotics, then specific bowel flora, minimised my POTS for about 3-6 months. later, another round achieved the same result, which partly faded over time. bowel-cleanse fluids (for a gastroendoscopy?) gave a similar beneficial effect...

Another possibility is transmission of specific pathogens between family members, that increase risk of ME/cfs.

the existing "Australian (medical) Guidelines" mentioned are still based on the GET/CBT/hysteria model. it will probably take some time and a lot of effort, for the NHMRC report to be finalised, for the existing medical guidelines (GET/CBT/hysteria model) to be updated with actual science, and...

thank you :) i've replied at 'the other place'. (i was relapsing remitting for a few decades)

another small anomaly in the "ME Australia" blog / recommendations it seems that the blog is discussing the relevant scientific knowledge of the NHMRC committee members, while the linked citation is discussing diagnostic criteria for research & clinic. is it possible that the citation is...

it's a proposal, not a done deal. the date for the next federal elections hasn't been announced yet (will be soon) - and it would need support from other parties, in both houses, because Greens are a minority party. there are other national issues that need to be addressed urgently, and any...

it's a wonderful policy. extra gold stars for ex-senator Scott Ludlam, who got the ball rolling many years ago. three cheers for the collaborative efforts of many many australian advocacy groups & individuals, who contacted their local politicians, attended advocacy events, etc.

this draft report (Dec 2018) DOES NOT claim the recovery rate is 99%. the section that mentions "99% recovery" in "post infectious fatigue" is a review of existing australian research (admittedly sparse, possibly includes Dubbo study) - AFAIK post infectious fatigue is not the same as ME/cfs...

perhaps there WERE critical articles, but the 'establishment' pulled strings, or implied career death, and the articles were disappeared.

is there a way to estimate the cost of publishing these articles, in these newspapers, as if they were an advertisement, rather than favour-for-mates propaganda ?

Monty Python's "Dead Parrot Sketch" ???

if we replace 'fatigue' with 'cough', 'itch', etc - this study remains equally meaningless, because a common symptom can have a multitude of different biomedical causes. do UK doctors still do differential diagnosis - or is that superceded by a BPS pamphlet, and being sent home to think...

#1 The use of the Chalder Fatigue Scale suggests they're studying general fatigue, not ME/CFS. (https://me-pedia.org/wiki/Chalder_fatigue_scale) Mainland China prefers FS-14 items. UK prefers FS-11 items (excludes items 5, 10 & 14). (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4730538/)...

https://www.the-scientist.com/features/can-the-flu-and-other-viruses-cause-neurodegeneration--65498 also highlights via Amy Proal on Twitter:

Oxford criteria is NOT similar to CCC/ICC. :banghead: Could be multiple pathogens, could be novel pathogens, could be lack of ability to detect the pathogens, etc. Our current knowledge of human pathogens, is only a fraction of the truth. (recent example -...

now i know why 'voice recognition software' in telephone call centres, literally cannot hear what i am clearly saying. sigh.

another confounding factor would be inter-generational poverty low income families -> financial stressors, less able to afford safe clean housing, warm clothes, healthy food, medical care, child care, transport, education. longer work hours, less recreation, lesser satisfaction in their work...