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https://cfstreatment.blogspot.com/2015/05/dr-kerr-rebuts-assertion-that-get-and.html

Excellent simple Service Specification- and not too much to ask! Parity with other Neurological conditions like MS should be in the spec now ME is coded on Snowmed as a neuro condition for GPs.

"......So now AfME have said (in a roundabout way) that they do not support PACE and its conclusions, will they now similarly condemn Crawley's research (MAGENTA, FITNET-NHS and others) as it all heavily relies on PACE as justification for its existence." Do we have a definitive answer to this...

Submitted to BMJ: PACE proponents, straw men and bricks. After reading professor Sharpe’s letter to the Times on the PACE Trial, I have followed the BMJ comments submitted by learned and informed people. I am not learned, but as a carer for some 20 plus years, I am reasonably informed. Perhaps...

Will he sign the Virology DT letter...?

I had to share this with everyone. What a brave doctor to stand up and say this. As he is passionate about healing his patients and sees totally what is going wrong today with modern medicine. https://www.facebook.com/100002383437166/posts/2048737831882311/ -4:41 323,388 Views

Indeed yes. I was astonished to learn this yesterday AND that he is in Suffolk!! Can we make Suffolk an a area of "excellence" and fulfill Dr Terry Mitchell's dream of replacing his post with Jonathan and another? https://www.careerscene.com/search/result/10048/biomedical-scientist Public...

I suggest we ask them and challenge on this? Not sure if this has been superseded but it is still on the net! https://www.actionforme.org.uk/uploads/me-and-work.pdf Legal context 6 Equality Act 2010 6 NHS Plus guidelines 7 CIPD guidance 8 Rights of carers

fermented herring is a famous traditional Swedish dish. Never has rotten herring smelled so bad but tasted so good. My goodness Jonathan. I had to look up that one, "Surstromming"' my Norwegian not being up to your speed! But on the other hand, it does appear we have gone full circle and got...

We all need an injection of humor now and again!.... I wonder what made them choose Red Whale!!?? sure it should be Red Wail........?

By the way, referring to my Red Wale/Red Herring comment..... Red herring A red herring is something that misleads or distracts from a relevant or important issue. It may be either a logical fallacy or a literary device that leads readers or audiences towards a false conclusion.

http://www.diycommitteeguide.org/download/info-sheet-community-interest-companies shttps://www.gov.uk/government/organisations/office-of-the-regulator-of-community-interest-companies

But, GP UPdate/Red Whale (or is it "Red Herring")? GP UPdate/Red Whale is a private Company, the "public face" of our privatised health system -(another CIC- Community Interest Company under the auspices of the Department of Communities and Local Government)- answerable only to Companies...

Let's not forget that ME impacts on the hormones endocrine system and HPA access. This undoubtedly lowers anyone's capacity to deal with "stressors"- whether it be illness, viral, bacterial, cognitive/social,- "emotional", trauma, usual life stresses, decision making etc (I use the work...

If you didn't talk about it and focused on other things, you would be accused of,"Persuasive Refusal Syndrome"....really, the patient is damned if they do and damned if they don't.

I have also alerted David Tuller about this.

I am still on the case but it's hard going! I did alert NICE to the "anomalies" both in January and the May Scoping meeting. Trouble is, I can get no one with "authority" to take this forward for me. I have tried MEA and Forward ME....... Might contact Neil Ridley MEA who did a brilliant...

Amy, my condolences and my sympathy for you and the family having to deal with all this stress and "stuff' at a time where you should have time and space for grieving. You are all very brave taking on both state, Inquest (now funded by County Councils ) who squeeze till the pips are dry, and...

Oh dear you poor thing........ my one is no better Tory doctor Desperate Dan..... also once a minister who stated untruths about children and ME and failed to agree to correct them. Sandy Martin, MP for Ipswich, I know, but he is not my MP BUT, he has signed the PACE stuff and attended the...