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  1. ahimsa

    Question: Coronavirus & home sewn masks?

    This Consumer Reports article on masks talks about risks of cloth masks:
  2. ahimsa

    Question: Coronavirus & home sewn masks?

    Here's info from the WHO about masks https://www.who.int/emergencies/diseases/novel-coronavirus-2019/advice-for-public/when-and-how-to-use-masks Edit: This is info on disposable masks but some of the information should apply to other types of masks.
  3. ahimsa

    Action CIND Webinar: "Post-Exertional Malaise: Identifying, Understanding and Preventing", March 24th at 11am PST/2pm EST

    Thanks for posting, @Andy :) I was just thinking that someone should post a notice about this webinar - glad you beat me to it! Edit #1 - The link to the webinar that I got from twitter seems different? https://zoom.us/webinar/register/WN_zqHqLg6eRrGwqP20gzUnUw Perhaps the link you shared...
  4. ahimsa

    Coronavirus - worldwide spread and control

    @Arnie Pye - I do think the response to the COVID-19 outbreak by USA government officials has been pretty bad. I have not posted any links to stories about it because I did want to be seen as getting into a political debate, something which is forbidden on this forum. It's hard for me to know...
  5. ahimsa

    Coronavirus - worldwide spread and control

    I don't think anyone has posted this Johns Hopkins link yet (searched but could not find it) so here it is: https://coronavirus.jhu.edu/ There's an interactive map feature: https://coronavirus.jhu.edu/map.html
  6. ahimsa

    Coronavirus: Advice from ME organisations

    I believe infants and young children are especially at risk of this problem, which is why there are products like Pedialyte (or store-brand versions, aka, generics) and ORS (oral rehydration salts?) packets that can be mixed with water.
  7. ahimsa

    Coronavirus: Advice from ME organisations

    Thank you @Trish :heart: I also have trouble absorbing information from videos (vs. printed text) so I appreciate both of your summaries! :)
  8. ahimsa

    NIH Directors Blog: Discovering the Brain’s Nightly “Rinse Cycle”

    [I think this is related but if it seems too off-topic then please report to moderators so this post can be deleted] The TV program NOVA had a recent episode all about sleep and I think it mentioned this. https://www.pbs.org/wgbh/nova/video/mysteries-of-sleep/ The part about "pink noise"...
  9. ahimsa

    Canadian Cardiovascular Society Position Statement on Postural Orthostatic Tachycardia Syndrome (POTS) and Related Disorders of Chronic Orthostatic I

    Thanks for that link, @Denise :) I found this table interesting: https://www.onlinecjc.ca/action/showFullTableHTML?isHtml=true&tableId=tbl1&pii=S0828-282X(19)31550-8 It summarizes five terms they've defined for different criteria: POTS, POTS plus, PSWT, PSWT plus, and PTOC. POTS = postural...
  10. ahimsa

    #MEawarenesshour every wednesday on twitter

    On Sunday, March 8th, most of the USA (except for a few smart places like Hawaii, Arizona, and maybe a few others I've forgotten) is switching to daylight saving time. This means we are moving the clocks ahead by an hour. I often miss the #MEAwarenessHour on Wednesdays (hard to be organized...
  11. ahimsa

    Coronavirus: Advice from ME organisations

    Do you remember where you read that? I've seen several sources, including the CDC, say that while hand washing is always a better option using hand sanitizer does help. That is, assuming that the hand sanitizer is applied correctly! I've seen people put some on their hands, rub a bit, and then...
  12. ahimsa

    Coronavirus - worldwide spread and control

    EDITED - I deleted the link to a recipe for home made hand sanitizer. I do believe it had the right proportions to get the right concentration of isopropyl alcohol. It definitely wasn't one of those debunked vodka recipes. However, I've read a few articles online that say it's really best not...
  13. ahimsa

    The Disability Dilemma: Difficulties Involving ERISA Claims for Subjective-Proof Diseases, 2020, Keeling

    For those who can't read 3 paragraphs (which includes me on many days!) this single line is the main point: "Just because objective tests do not evidence these diseases does not mean they are any less disabling"
  14. ahimsa

    The Disability Dilemma: Difficulties Involving ERISA Claims for Subjective-Proof Diseases, 2020, Keeling

    Thanks for posting @Dolphin For those who have never heard of ERISA the word "retirement" in the ERISA acronym can be misleading. These laws also apply to employer-provided insurance plans, including long term disability (LTD) plans. These LTD benefits are usually coordinated with...
  15. ahimsa

    Article: Woman with ME models and dances with her wheelchair in George at Asda ad to show ambulatory wheelchair users exist -Feb 2020

    Thanks for the link, @Sly Saint :) I saw something about this on twitter not long ago so it's nice to read more about the photo shoot. It's so important to spread the word that ambulatory wheelchair users exist :emoji_wheelchair: I always need a wheelchair when going through airports. On my...
  16. ahimsa

    Trans-NIH ME/CFS Working Group Telebriefings 2020-2021 (next telebriefing March 30 2021)

    Just FYI, here's where to find the list of events for the Trans-NIH ME/CFS Working Group https://www.nih.gov/mecfs/events It lists past events as well as upcoming events.
  17. ahimsa

    #MEAction: Meet the scientist: Dr. Lucinda Bateman

    #MEAction has posted an interview with Dr. Lucinda Batemen of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia. https://www.meaction.net/2020/02/18/meet-the-scientist-interview-with-dr-lucinda-bateman/
  18. ahimsa

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    I think it's because most people without ME, and even some patients with ME, think one of the main problems is that ME patients are either not trying hard enough (have no motivation) -OR- are quitting far too quickly when they feel even a few tiny symptoms. Sad to say that many folks don't seem...
  19. ahimsa

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    Probably not directly related, but I thought it was interesting to see this tweet about measuring blood flow to the brain in astronauts yesterday: Pretty sure they are using a different method of measurement. But still, undergoing tilt table tests and measuring blood flow to the brain - two...
  20. ahimsa

    #MEAction UK: "Take ME Seriously" project needs comments & signatures to send to NICE

    Update: Anyone can join in this advocacy action. It is not just for UK residents. I asked ME Action UK via twitter and got this response https://twitter.com/MEActNetUK/status/1227297090394558464
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