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Article about this study by Science Daily - https://www.sciencedaily.com/releases/2019/09/190909081756.htm Edited to add a quote from the article

Thanks for posting. I'm hoping this discovery (and future studies) will eventually be helpful for the subset of ME/cfs patients who have POTS, NMH or some other sort of Orthostatic Intolerance.

At the symposium today speaker Ron Tompkins announced a new website, The Harvard ME/CFS Collaboration: http://endmecfs.mgh.harvard.edu/

Hi @Grigor :emoji_wave: Thanks for the translated quote - just retweeted it! :emoji_relaxed:

I forgot to mention one thing. From the last slide of the presentation: * Dr. Roberds will participate in the next NIH ME/CFS Advocacy call on October 17th to further discuss this report I generally don't participate in any of these live calls or presentations (just too hard for me to...

Some screen shots from the video (not the whole thing). I think these are in order. (crosses fingers)

I have a few comments after watching the video. The ME/CFS presentation starts at about minute 56. The talk ends at about 1:24, followed by a question/answer period until about 1:41. The intro slides (see screen shots in the next post) seemed pretty good. The only objection I had about the...

The link to the recorded video is the same as the live videocast link that was listed in a post made by @Tom Kindlon above. But I thought I'd repost it here - https://videocast.nih.gov/summary.asp?Live=33390&bhcp=1 The ME/CFS part starts at about minute 56. I'm going to watch it now. I'm...

Yes, sorry for any confusion! I thought you already knew where to find the full instructions or I would have pointed out where they were. I know it was still on the CDC website as of May 12th this year. I checked because I used that exact phrase on a poster for our local May 12th Millions...

For what it's worth, I got the email with the addresses a day or two after the postcards arrived.

Is that the same Pendegrast? It shows T as the initial. I searched for Robert Pendegrast and found these links which match the location cited above (August, GA). Middle name Allison. https://www.augustahealth.org/find-a-doctor/find-a-doctor?id=293...

Here's a short good news / bad news update. The good news is that there was a huge response for this project! ME Action got requests for more than 3500 postcards. :thumbup: The bad news is that they have had to put the project on hold for a bit so they can catch up. But they're going to...

This is kind of rambling, so I don't know how helpful it is, but thought I'd add my two cents. Maybe it partly depends on how sick the patient is? When I was very sick, any exertion was unpleasant and the post-exertion symptoms were even worse. Now that I'm more moderate, if I have rested for...

I put my first batch of five postcards in the mail today! https://twitter.com/ahimsa_pdx/status/1164568277147742210

FYI, for folks who are deaf or hard of hearing there are no subtitles and no signed interpreters. Probably best to wait for a transcript.

I see a couple of comments in the chat window but, sadly, "je ne parle pas francais" ;)

I saw this tweet last night that said the livestream starts a half hour early. https://twitter.com/wigglethemouse/status/1164384541311524864

Thank you. That's a risk my cardiologist has not mentioned (or maybe I've just forgotten?). I will ask him next time. I was so excited to see an SVT episode "on paper" after so many years! The Kardia device is pretty cool (see link in first post in the thread). But, of course, it's not...

My cardiologist has been telling me for years that I should get ablation done. I'm hesitant because my SVT is annoying but not disabling. I'm mildly concerned about undergoing the procedure and having it making something else worse (mainly my POTS/NMH issues but also ME - whether those are all...

Thanks for your reply and the link to that research! :) I will start by saying I don't fully understand all the terms for different heart issues. So I may be using the language incorrectly. Feel free to correct me if I mess up the terminology! I clicked on the link you gave and did a quick...