Canadian Federal Health Minister to make announcement regarding ME, August 22

[DokaGirl]

The Canadian Federal Health Minister will make an important announcement about ME at 2pm Montreal time, August 22nd:

https://gallery.mailchimp.com/4c38d...345fc4/Invitation_bilingual_22_aou_t_2019.pdf

 

[rvallee]

CHU Ste-Justine. That's where Alain Moreau works!

Fingers crossed this is good news.

 

[DokaGirl]

Further to this - I know there is a pending decision about a grant offering.

As well, reps from Millions Missing Canada including @ScottTriGuy and Action CIND, and possibly others met with the Minister a couple months ago.

The Health Minister has acknowledged ME as a serious but stigmatized disease, and has tweeted about Severe ME Day.

I do not know what the announcement will be about.

Perhaps others do.

@ScottTriGuy?

 

[DokaGirl]

Yes, @rvallee, it's probably likely about the grant application decision, given the location.

ETA: I am hoping it is more than that, and a general statement about the biomedical reality of ME. I know a successful grant app can do this as well, but not as directly.

 

[Milo]

Merged thread



Link to the Livestream:
It will start at 10:30 EST.

We encourage all Canadians to attend in person or online. International patients also welcome. Please share with your family and friends.

 

[Lisa108]

Time Zone Converter here

 

[ScottTriGuy]

I'm flying to (and fro) Montreal tomorrow for the announcement, but can neither confirm nor deny rumours about content

I can say it will be good (but not enough, of course) news.

 

[ScottTriGuy]

For others who are also technically inept:

 

[Hoopoe]

Piecing together all the bits of information, it appears that funding of biomedial research will be announced and that Alain Moreau will play a role.

 

[Dolphin]

I'm flying to (and fro) Montreal tomorrow for the announcement, but can neither confirm nor deny rumours about content

I can say it will be good (but not enough, of course) news.

Thanks for all the time, energy and money (I presume) you have spent/invested for your activism.

 

[ScottTriGuy]

Thanks - fwiw, the govt is footing the travel costs for this, but yeah, lots of time and energy...and relationship building by a group of us, so today is pivotal.

 

[DokaGirl]

Thank you very much @ScottTriGuy and others who were involved in this!

Cheers!

 

[Andy]

Media advisory
Montreal, Quebec – August 21, 2019 – The Honourable Ginette Petitpas Taylor, Minister of Health, will announce an investment about myalgic encephalomyelitis, formerly known as chronic fatigue syndrome, or ME/CFS.

Media are invited to join a lab tour and a media availability with the Minister. Researchers and patients will also be available to speak to the media.

https://www.canada.ca/en/institutes...le-living-with-myalgic-encephalomyelitis.html

 

[DokaGirl]

Time confusion: 2h00pm in the original release means? I assumed 2:00 pm, but others here have said the event starts at 10:30 EST, and the release to the media says - 2:00pm.

The count down clock says about 3 1/2 hours left till the event starts.

Any comments?

 

[DokaGirl]

Thanks @Andy for posting the media release from the federal gov't. I note the release says "formerly known as chronic fatigue syndrome". Thank you to the government for this big change, and an enormous thanks to all who promoted the change - it's taken decades!

I hope the name is standardized to ME world-wide.

 

[Kalliope]

ipolitics: Team Trudeau front benchers fan out to promote federal support for health research, women entrepreneurs and Yukon conservation efforts

After spending the last few days making the rounds on her Atlantic Canadian home turf, Health Minister Ginette Petitpas Taylor heads to the Sainte-Justine University Hospital Research Centre in Montreal with a fresh tranche of federal cash to boost research that, according to the advisory, aims to “improve the quality of life of people living with myalgic encephalomyelitis,” which, it notes, was “formerly known as chronic fatigue syndrome.”

 

[Binkie4]

Still troubled by time confusion.

2pm Montreal equates to 7pm BST or have I got that wrong? That is 1 hour 5 mins from now which does not equate with the 35 mins on the countdown clock. ???

 

[DokaGirl]

I hope the announcement can be posted online later. I imagine it will be.

 

[ahimsa]

Still troubled by time confusion.

2pm Montreal equates to 7pm BST or have I got that wrong? That is 1 hour 5 mins from now which does not equate with the 35 mins on the countdown clock. ???

I saw this tweet last night that said the livestream starts a half hour early.

https://twitter.com/wigglethemouse/status/1164384541311524864

 

[Binkie4]

Thank you @ahimsa and @wigglethemouse