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I did. I do. Why? Did the Lyme kill off the ME/CFS? Does that mean I need never worry about getting cancer as Lyme will eradicate it? People can have more than one disease at the same time. I've three at least right now. Four.

Oh dear. In the US, in North Carolina, many CDC-approved and FDA-approved tests for Lyme were positive for patients, and later recommended to be discounted because someone maintained there weren't enough of the right kinds of ticks in NC. Which is just silly. This blade swings both ways. Who...

Can you, if you stick to FDA-approved? Although there are gougers for sure, I'm not clear on how large this specific problem is. Lyme patients aren't all rubes; people know how to research, and now more than ever before, they do. Period. Here is the real problem. This is a two-sided coin. Show...

There are some genetic tests. Not many. There are a handful of neurologists that might make a clinical call. Sorry, I don't remember in general how testing is done. I know only one rare type, and it's a genetic one. I think testing sodium/potassium/calcium levels while episodic might be a way...

It's like trying to share the gravity of ME/CFS to not just healthy people, but to other chronically ill - you have to live with a channelopathy, or live with someone who has one, to grok it.

How many diseases that fall under this umbrella have fingerprints on them?

I wonder who the science advisor was for the Contagion script. :rolleyes:

While it's great to sorta admit there are long-term intractable problems with some infections, and it's great to unite infection sufferers under a kind of support group/banner, and yes, there's power in numbers - I still cannot help feeling "one step forward, two steps back". How'd direct CDC...

Small world. I was recruited for this for the CFS cohort, and also considered for the PTLD part; I declined regardless: And I was in a subsequent one to this below with the Georgetown U folks.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9632922/ https://pubs.acs.org/doi/10.1021/pr300577p

Mental illnesses are problems with the brain. I use brain cancer as my rubric. Would I go to a psychiatrist to treat my brain cancer if I developed it? That's just silly. Nor would I go to one if my brain were infected by a pathogen - even if I evidenced mental problems. If psychiatry is...

That lot wears hyperbole like a bad toupee.

Diagnostics suck.

I have found that the math is not a neat math. It's more or less guilt or success by association. My ire is pretty much directed at diagnostics, but I've plenty to go around. There's more than enough for clinicians and researchers who ascribe binary diagnoses to phantom culprits based on...

How do you balance the positives associated with treating possible bacterial infections with the negatives of mitochondrial problems?

Lots of conflicting data out there. Lots. I seem to recall a 2011 or so study which suggested tetracyclines were helpful in some MS cases. But I don't recall if it was ever replicated. And forget about Lyme disease. I've eaten boatloads of doxy and mino. Distressing to think I may have paved...

So this applies to both me and my wife, but no pain for me. And in theory no PEM for my wife, but she gets "episodes" that can occur a day or two or whatever after doing too much. Are episodes PEM? Is it all her symptoms? Hard to tell anymore. I sometimes think this may contribute to the...

Parody of esteem.

Muscle weakness is a hallmark of channelopathies as well. There are more and more channelopathies being identified - or at least labeled as such - without genetic markers, i.e., that have no known genetic marker yet. For instance, my wife has a rare channelopathy that is called ATS1. It is...