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  1. NelliePledge

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    I suspect that if someone followed up on the people giving these testimonials over a 10 year period almost all those who had post exertional malaise and symptom exacerbation would have relapsed
  2. NelliePledge

    Factors associated with work status in chronic fatigue syndrome (2019) S A M Stevelink, N T Fear, M Hotopf, T Chalder

    DWP/NHS (not sure which) have a contract with a company that helps with advice about return to work and can take this on so the GP doesn’t have to have any discussions with employer. Basically it’s just some people in a call centre. http://fitforwork.org/ Which is a subsidiary of this group...
  3. NelliePledge

    "Scientific studies"

    Love John Oliver
  4. NelliePledge

    Weekly collapses

    Even if your GP doesn’t come up with anything useful at the moment it still a good idea to see them about it so it will be on your medical records that you are having this problem so it’s there if you need emergency treatment.
  5. NelliePledge

    Factors associated with work status in chronic fatigue syndrome (2019) S A M Stevelink, N T Fear, M Hotopf, T Chalder

    Perhaps they should change their names by deed poll so the paper is by Malingerer, Fear, Avoidance and Catastrophise
  6. NelliePledge

    Factors associated with work status in chronic fatigue syndrome (2019) S A M Stevelink, N T Fear, M Hotopf, T Chalder

    The early involvement of occupational health is simply to get you back to work more or less as soon as they are in contact with you albeit on phased return. May well be the right approach to encourage people with depression to get back to work. From my experience phased return was like pushing...
  7. NelliePledge

    A perspective on causation of the chronic fatigue syndrome by considering its nosology, 2019, White

    Test of these people who reckon it’s functional - would they be willing to have a blood transfusion from some people with ME?
  8. NelliePledge

    ME/CFS NICE Guideline - Safety testing of GET in PACE trial

    Agreed this is an excellent post @Barry very understandable to non scientist and a compelling comparison.
  9. NelliePledge

    A perspective on causation of the chronic fatigue syndrome by considering its nosology, 2019, White

    I thought he’d retired? Wasn’t that said when they were fighting the release of data. Maybe if he’s out of retirement he can now get off his arse and fully cooperate in releasing data.
  10. NelliePledge

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    That question 5 on the first doc is particularly invidious Even though I experience symptoms I don’t think they are actually harming me. Talk about leading the witness.
  11. NelliePledge

    Fantastic redesign of hot water bottle for pain relief

    I like the look of the ones on the second link. They look pretty comfy. I usually go for M&S basic big knickers or Sloggi.
  12. NelliePledge

    The PACE trial video series by A Broken Battery

    I think it’s very good for education of people with ME who aren’t well informed about the politics.
  13. NelliePledge

    Activity baseline vs activity ceiling, why concepts and language matter

    Yes there are some good graphics I’ve used on social media to get the battery message over. Occasionally post it if I’ve got bad PEM to highlight that to social contacts in a more accessible way.
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